Adult learning online education:
Adult learning online education:
Adult learning online education:
About the example: Boolean searches were conducted on November 4, 2019; result numbers may vary at a later date. No additional database limiters were set to further narrow search returns.
Database strategies for targeted search results.
Most databases include limiters, or additional parameters, you may use to strategically focus search results. EBSCO databases, such as Education Research Complete & Academic Search Complete provide options to:
Keep in mind that these tools are defined as limiters for a reason; adding them to a search will limit the number of results returned. This can be a double-edged sword. How?
Use limiters with care. When starting a search, consider opting out of limiters until the initial literature screening is complete. The second or third time through your research may be the ideal time to focus on specific time periods or material (scholarly vs newspaper).
Expanding your search term at the root.
Truncating is often referred to as 'wildcard' searching. Databases may have their own specific wildcard elements however, the most commonly used are the asterisk (*) or question mark (?). When used within your search. they will expand returned results.
Using the asterisk wildcard will return varied spellings of the truncated word. In the following example, the search term education was truncated after the letter "t."
Original Search | |
adult education | adult educat* |
Results included: educate, education, educator, educators'/educators, educating, & educational |
Explore these database help pages for additional information on crafting search terms.
Tips for saving research directly to Google drive.
It is possible to save articles (PDF and HTML) and abstracts in EBSCOhost databases directly to Google drive. Select the Google Drive icon, authenticate using a Google account, and an EBSCO folder will be created in your account. This is a great option for managing your research. If documenting your research in a Google Doc, consider linking the information to actual articles saved in drive.
EBSCOHost Databases & Google Drive: Managing your Research
This video features an overview of how to use Google Drive with EBSCO databases to help manage your research. It presents information for connecting an active Google account to EBSCO and steps needed to provide permission for EBSCO to manage a folder in Drive.
About the Video: Closed captioning is available, select CC from the video menu. If you need to review a specific area on the video, view on YouTube and expand the video description for access to topic time stamps. A video transcript is provided below.
What is a literature review.
A definition from the Online Dictionary for Library and Information Sciences .
A literature review is "a comprehensive survey of the works published in a particular field of study or line of research, usually over a specific period of time, in the form of an in-depth, critical bibliographic essay or annotated list in which attention is drawn to the most significant works" (Reitz, 2014).
A systemic review is "a literature review focused on a specific research question, which uses explicit methods to minimize bias in the identification, appraisal, selection, and synthesis of all the high-quality evidence pertinent to the question" (Reitz, 2014).
EBSCO Connect [Discovery and Search]. (2022). Searching with boolean operators. Retrieved May, 3, 2022 from https://connect.ebsco.com/s/?language=en_US
EBSCO Connect [Discover and Search]. (2022). Searching with wildcards and truncation symbols. Retrieved May 3, 2022; https://connect.ebsco.com/s/?language=en_US
Machi, L.A. & McEvoy, B.T. (2009). The literature review . Thousand Oaks, CA: Corwin Press:
Reitz, J.M. (2014). Online dictionary for library and information science. ABC-CLIO, Libraries Unlimited . Retrieved from https://www.abc-clio.com/ODLIS/odlis_A.aspx
Ridley, D. (2008). The literature review: A step-by-step guide for students . Thousand Oaks, CA: Sage Publications, Inc.
Schedule an appointment.
Contact a librarian directly (email), or submit a request form. If you have worked with someone before, you can request them on the form.
What is a Literature (Lit) Review?
A Literature Review is Not:
So, what is it then?
A literature review is an integrated analysis-- not just a summary-- of scholarly writings that are related directly to your research question. That is, it represents the literature that provides background information on your topic and shows a correspondence between those writings and your research question.
A literature review may be a stand alone work or the introduction to a larger research paper, depending on the assignment. Rely heavily on the guidelines your instructor has given you.
Why is it important?
A literature review is important because it:
Adapted from: https://libguides.uwf.edu/c.php?g=215270&p=4439026 by Hillary Fox, University of West Florida, hfox @uwf.edu.
Creating a Literature Review using the Matrix Method:
A matrix review allows you to quickly compare and contrast articles in an easy to read format. It can help you to easily spot differences and similarities between journal articles and your nursing research topic. Review matrices are especially helpful for health sciences literature reviews that cover the scope of research over a given amount of time.
Most literature reviews are set up in this format:
Source(citation) | Research Question (Purpose) | Methods | Major findings | Notes: |
---|---|---|---|---|
Martin, JE et al. (2006) A DNA vaccine for ebola virus is safe and immunogenic in phase I clinical trial. (11), 1267-1277. | Determine the safety and immuogenicity of ebola vaccine in healthy adults | Dependent variables were reactogenicity (recorded by participants)/antibody response. Independent variables were dose placebo or vaccine. 27 = n, 21 = vaccine, 6 = placebo, male and female, 18- 44. Phase I, randomized, placebo-controlled, double-blinded, dose escalation | -safe and well tolerated in 21 adults, -induced ebola specific antibodies and T-cell response | |
Ledgerwood, J.E. et al. (2010). A replication defective recombinant Ad5 vaccine expressing Ebola virus GP is safe and immunogenic ain healthy adults. (2), 304-13. | Determine safety and immunogenicity of ebola cavvine in healthy adults | Dependent variables were reactogenicity (recorded by participants)/ antibody response. Independent variables were dose- placebo or vaccine. 31 = n, 23 vaccine, 8 placebo, male and female, 15-50 (originally 32, one dropped out). Phase I, double-blinded, randomized placebo-controlled, dose escalation. | -3 adverse events in course of study, -was immunogenic and produced humoral and T cell responses |
Chart adapted from the book below:
Steps for Conducting a Literature Review
1. Choose Your Topic
2. Decide on the scope of your review
3. Select the databases you want to use to conduct your searches (See the Databases Tab Above!)
4. Conduct your searches and find the literature. (Keep track of your searches, try using the Search Strategy Lab Notebook!)
5. Review the Literature (This will probably be the most time consuming part)
Literature Review Examples
Remember, a lit review provides an intelligent overview of the topic. There may or may not be a method for how studies are collected or interpreted. Lit reviews aren't always labeled specifically as "literature reviews," they may often be embedded with other sections such as an introduction or background.
Adapted from: https://libguides.uwf.edu/c.php?g=215270&p=4439026 by Hillary Fox, University of West Florida, [email protected].
Module 4: Strategic Reading
The next step after reading and evaluating your sources is to organize them in a way that will help you start the writing process.
One way to organize your literature is with a review matrix. The review matrix is a chart that sorts and categorizes the different arguments presented per topic or issue. Using a matrix enables you to quickly compare and contrast your sources in order to determine the scope of research across time. This will allow you to spot similarities and differences between sources. It is particularly useful in the synthesis and analysis stages of a review (See Module 1 Conducting a Literature Review with the SALSA Framework ).
Example of a Review Matrix
My research question:
How can we use machine learning to analyze social media data related to HIV?
Sources | Methods | Concept 1 | Concept 2 | Concept 3 | Gaps, Problems, Questions, Notes |
Source 1:
Signorini, A., Segre, A. M., & Polgreen, P. M. (2011). The use of Twitter to track levels of disease activity and public concern in the U.S. during the influenza A H1N1 pandemic. PloS one, 6(5), e19467. | Collected and stored a large sample of public tweets that matched a set of pre-specified search terms and geocoded. Estimated rate of disease and public sentiment toward swine flu | Able to make predictions about swine flu using social media data. This data is vital given that “an influenza surveillance program does not exist” (p. 3) | “When and where tweets are less frequent (or where only a subset of tweets contain geographic information), the performance of our model may suffer.” | ||
Source 2:
Chiu, C. J., Menacho, L., Fisher, C., & Young, S. D. (2015). Ethics issues in social media–based HIV prevention in low-and middle-income countries. Cambridge Quarterly of Healthcare Ethics, 24(3), 303-310. | Quantitative survey assessing participants’ perspectives on educational intervention | Increasing social media use in low- and middle-income countries. Participant took part in an HIV education program on Facebook | Most participants felt like they benefited positively from the program and learned about HIV prevention. All participants were MSM | Note: Helpful article for including diverse perspectives | |
Source 3:
Bollen, J., Mao, H., & Zeng, X. (2011). Twitter mood predicts the stock market. Journal of computational science, 2(1), 1-8 | Collected public tweets and analyzed mood | Gathered data from Twitter posts that explicitly states moods (e.g. “I’m feeling…”). Found that positive/negative sentiment on Twitter is 87.6% accurate for predicting stock market average | Used a “Self-Organizing Fuzzy Neural Network” to predict Dow Jones Industrial Average (p. 1) |
Writing a Literature Review Modified from The WI+RE Team, UCLA. Creative Commons CC-BY-NA-SA
Start with a charting tool you are most familiar with (for example MS Word, MS Excel, Google Sheets, Numbers etc).
Key Takeaways
Here are some examples of different review matrices and templates:
Advanced Research Skills: Conducting Literature and Systematic Reviews (2nd Edition) Copyright © 2021 by Kelly Dermody; Cecile Farnum; Daniel Jakubek; Jo-Anne Petropoulos; Jane Schmidt; and Reece Steinberg is licensed under a Creative Commons Attribution 4.0 International License , except where otherwise noted.
https://doi.org/10.1136/ebnurs-2021-103417
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Literature reviews offer a critical synthesis of empirical and theoretical literature to assess the strength of evidence, develop guidelines for practice and policymaking, and identify areas for future research. 1 It is often essential and usually the first task in any research endeavour, particularly in masters or doctoral level education. For effective data extraction and rigorous synthesis in reviews, the use of literature summary tables is of utmost importance. A literature summary table provides a synopsis of an included article. It succinctly presents its purpose, methods, findings and other relevant information pertinent to the review. The aim of developing these literature summary tables is to provide the reader with the information at one glance. Since there are multiple types of reviews (eg, systematic, integrative, scoping, critical and mixed methods) with distinct purposes and techniques, 2 there could be various approaches for developing literature summary tables making it a complex task specialty for the novice researchers or reviewers. Here, we offer five tips for authors of the review articles, relevant to all types of reviews, for creating useful and relevant literature summary tables. We also provide examples from our published reviews to illustrate how useful literature summary tables can be developed and what sort of information should be provided.
Tabular literature summaries from a scoping review. Source: Rasheed et al . 3
The provision of information about conceptual and theoretical frameworks and methods is useful for several reasons. First, in quantitative (reviews synthesising the results of quantitative studies) and mixed reviews (reviews synthesising the results of both qualitative and quantitative studies to address a mixed review question), it allows the readers to assess the congruence of the core findings and methods with the adapted framework and tested assumptions. In qualitative reviews (reviews synthesising results of qualitative studies), this information is beneficial for readers to recognise the underlying philosophical and paradigmatic stance of the authors of the included articles. For example, imagine the authors of an article, included in a review, used phenomenological inquiry for their research. In that case, the review authors and the readers of the review need to know what kind of (transcendental or hermeneutic) philosophical stance guided the inquiry. Review authors should, therefore, include the philosophical stance in their literature summary for the particular article. Second, information about frameworks and methods enables review authors and readers to judge the quality of the research, which allows for discerning the strengths and limitations of the article. For example, if authors of an included article intended to develop a new scale and test its psychometric properties. To achieve this aim, they used a convenience sample of 150 participants and performed exploratory (EFA) and confirmatory factor analysis (CFA) on the same sample. Such an approach would indicate a flawed methodology because EFA and CFA should not be conducted on the same sample. The review authors must include this information in their summary table. Omitting this information from a summary could lead to the inclusion of a flawed article in the review, thereby jeopardising the review’s rigour.
Critical appraisal of individual articles included in a review is crucial for increasing the rigour of the review. Despite using various templates for critical appraisal, authors often do not provide detailed information about each reviewed article’s strengths and limitations. Merely noting the quality score based on standardised critical appraisal templates is not adequate because the readers should be able to identify the reasons for assigning a weak or moderate rating. Many recent critical appraisal checklists (eg, Mixed Methods Appraisal Tool) discourage review authors from assigning a quality score and recommend noting the main strengths and limitations of included studies. It is also vital that methodological and conceptual limitations and strengths of the articles included in the review are provided because not all review articles include empirical research papers. Rather some review synthesises the theoretical aspects of articles. Providing information about conceptual limitations is also important for readers to judge the quality of foundations of the research. For example, if you included a mixed-methods study in the review, reporting the methodological and conceptual limitations about ‘integration’ is critical for evaluating the study’s strength. Suppose the authors only collected qualitative and quantitative data and did not state the intent and timing of integration. In that case, the strength of the study is weak. Integration only occurred at the levels of data collection. However, integration may not have occurred at the analysis, interpretation and reporting levels.
While reading and evaluating review papers, we have observed that many review authors only provide core results of the article included in a review and do not explain the conceptual contribution offered by the included article. We refer to conceptual contribution as a description of how the article’s key results contribute towards the development of potential codes, themes or subthemes, or emerging patterns that are reported as the review findings. For example, the authors of a review article noted that one of the research articles included in their review demonstrated the usefulness of case studies and reflective logs as strategies for fostering compassion in nursing students. The conceptual contribution of this research article could be that experiential learning is one way to teach compassion to nursing students, as supported by case studies and reflective logs. This conceptual contribution of the article should be mentioned in the literature summary table. Delineating each reviewed article’s conceptual contribution is particularly beneficial in qualitative reviews, mixed-methods reviews, and critical reviews that often focus on developing models and describing or explaining various phenomena. Figure 2 offers an example of a literature summary table. 4
Tabular literature summaries from a critical review. Source: Younas and Maddigan. 4
While developing literature summary tables, many authors use themes or subthemes reported in the given articles as the key results of their own review. Such an approach prevents the review authors from understanding the article’s conceptual contribution, developing rigorous synthesis and drawing reasonable interpretations of results from an individual article. Ultimately, it affects the generation of novel review findings. For example, one of the articles about women’s healthcare-seeking behaviours in developing countries reported a theme ‘social-cultural determinants of health as precursors of delays’. Instead of using this theme as one of the review findings, the reviewers should read and interpret beyond the given description in an article, compare and contrast themes, findings from one article with findings and themes from another article to find similarities and differences and to understand and explain bigger picture for their readers. Therefore, while developing literature summary tables, think twice before using the predeveloped themes. Including your themes in the summary tables (see figure 1 ) demonstrates to the readers that a robust method of data extraction and synthesis has been followed.
Often templates are available for data extraction and development of literature summary tables. The available templates may be in the form of a table, chart or a structured framework that extracts some essential information about every article. The commonly used information may include authors, purpose, methods, key results and quality scores. While extracting all relevant information is important, such templates should be tailored to meet the needs of the individuals’ review. For example, for a review about the effectiveness of healthcare interventions, a literature summary table must include information about the intervention, its type, content timing, duration, setting, effectiveness, negative consequences, and receivers and implementers’ experiences of its usage. Similarly, literature summary tables for articles included in a meta-synthesis must include information about the participants’ characteristics, research context and conceptual contribution of each reviewed article so as to help the reader make an informed decision about the usefulness or lack of usefulness of the individual article in the review and the whole review.
In conclusion, narrative or systematic reviews are almost always conducted as a part of any educational project (thesis or dissertation) or academic or clinical research. Literature reviews are the foundation of research on a given topic. Robust and high-quality reviews play an instrumental role in guiding research, practice and policymaking. However, the quality of reviews is also contingent on rigorous data extraction and synthesis, which require developing literature summaries. We have outlined five tips that could enhance the quality of the data extraction and synthesis process by developing useful literature summaries.
Twitter @Ahtisham04, @parveenazamali
Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.
Competing interests None declared.
Patient consent for publication Not required.
Provenance and peer review Not commissioned; externally peer reviewed.
A literature review is a discussion of the literature (aka. the "research" or "scholarship") surrounding a certain topic. A good literature review doesn't simply summarize the existing material, but provides thoughtful synthesis and analysis. The purpose of a literature review is to orient your own work within an existing body of knowledge. A literature review may be written as a standalone piece or be included in a larger body of work.
You can read more about literature reviews, what they entail, and how to write one, using the resources below.
Dr. Zina O'Leary explains the misconceptions and struggles students often have with writing a literature review. She also provides step-by-step guidance on writing a persuasive literature review.
Dr. Eric Jensen, Professor of Sociology at the University of Warwick, and Dr. Charles Laurie, Director of Research at Verisk Maplecroft, explain how to write a literature review, and why researchers need to do so. Literature reviews can be stand-alone research or part of a larger project. They communicate the state of academic knowledge on a given topic, specifically detailing what is still unknown.
This is the first video in a whole series about literature reviews. You can find the rest of the series in our SAGE database, Research Methods:
Videos covering research methods and statistics
Finding connections between sources is key to organizing the arguments and structure of a good literature review. In this video, you'll learn how to identify themes, debates, and gaps between sources, using examples from real papers.
While each review will be unique in its structure--based on both the existing body of both literature and the overall goals of your own paper, dissertation, or research--this video from Scribbr does a good job simplifying the goals of writing a literature review for those who are new to the process. In this video, you’ll learn what to include in each section, as well as 4 tips for the main body illustrated with an example.
One of the most daunting aspects of writing a literature review is organizing your research. There are a variety of strategies that you can use to help you in this task. We've highlighted just a few ways writers keep track of all that information! You can use a combination of these tools or come up with your own organizational process. The key is choosing something that works with your own learning style.
Citation managers are great tools, in general, for organizing research, but can be especially helpful when writing a literature review. You can keep all of your research in one place, take notes, and organize your materials into different folders or categories. Read more about citations managers here:
Some writers use concept mapping (sometimes called flow or bubble charts or "mind maps") to help them visualize the ways in which the research they found connects.
There is no right or wrong way to make a concept map. There are a variety of online tools that can help you create a concept map or you can simply put pen to paper. To read more about concept mapping, take a look at the following help guides:
A synthesis matrix is is a chart you can use to help you organize your research into thematic categories. By organizing your research into a matrix, like the examples below, can help you visualize the ways in which your sources connect.
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A literature review is a document or section of a document that collects key sources on a topic and discusses those sources in conversation with each other (also called synthesis ). The lit review is an important genre in many disciplines, not just literature (i.e., the study of works of literature such as novels and plays). When we say “literature review” or refer to “the literature,” we are talking about the research ( scholarship ) in a given field. You will often see the terms “the research,” “the scholarship,” and “the literature” used mostly interchangeably.
There are a number of different situations where you might write a literature review, each with slightly different expectations; different disciplines, too, have field-specific expectations for what a literature review is and does. For instance, in the humanities, authors might include more overt argumentation and interpretation of source material in their literature reviews, whereas in the sciences, authors are more likely to report study designs and results in their literature reviews; these differences reflect these disciplines’ purposes and conventions in scholarship. You should always look at examples from your own discipline and talk to professors or mentors in your field to be sure you understand your discipline’s conventions, for literature reviews as well as for any other genre.
A literature review can be a part of a research paper or scholarly article, usually falling after the introduction and before the research methods sections. In these cases, the lit review just needs to cover scholarship that is important to the issue you are writing about; sometimes it will also cover key sources that informed your research methodology.
Lit reviews can also be standalone pieces, either as assignments in a class or as publications. In a class, a lit review may be assigned to help students familiarize themselves with a topic and with scholarship in their field, get an idea of the other researchers working on the topic they’re interested in, find gaps in existing research in order to propose new projects, and/or develop a theoretical framework and methodology for later research. As a publication, a lit review usually is meant to help make other scholars’ lives easier by collecting and summarizing, synthesizing, and analyzing existing research on a topic. This can be especially helpful for students or scholars getting into a new research area, or for directing an entire community of scholars toward questions that have not yet been answered.
Most lit reviews use a basic introduction-body-conclusion structure; if your lit review is part of a larger paper, the introduction and conclusion pieces may be just a few sentences while you focus most of your attention on the body. If your lit review is a standalone piece, the introduction and conclusion take up more space and give you a place to discuss your goals, research methods, and conclusions separately from where you discuss the literature itself.
Introduction:
Conclusion:
Lit reviews can take many different organizational patterns depending on what you are trying to accomplish with the review. Here are some examples:
Any lit review is only as good as the research it discusses; make sure your sources are well-chosen and your research is thorough. Don’t be afraid to do more research if you discover a new thread as you’re writing. More info on the research process is available in our "Conducting Research" resources .
As you’re doing your research, create an annotated bibliography ( see our page on the this type of document ). Much of the information used in an annotated bibliography can be used also in a literature review, so you’ll be not only partially drafting your lit review as you research, but also developing your sense of the larger conversation going on among scholars, professionals, and any other stakeholders in your topic.
Usually you will need to synthesize research rather than just summarizing it. This means drawing connections between sources to create a picture of the scholarly conversation on a topic over time. Many student writers struggle to synthesize because they feel they don’t have anything to add to the scholars they are citing; here are some strategies to help you:
The most interesting literature reviews are often written as arguments (again, as mentioned at the beginning of the page, this is discipline-specific and doesn’t work for all situations). Often, the literature review is where you can establish your research as filling a particular gap or as relevant in a particular way. You have some chance to do this in your introduction in an article, but the literature review section gives a more extended opportunity to establish the conversation in the way you would like your readers to see it. You can choose the intellectual lineage you would like to be part of and whose definitions matter most to your thinking (mostly humanities-specific, but this goes for sciences as well). In addressing these points, you argue for your place in the conversation, which tends to make the lit review more compelling than a simple reporting of other sources.
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Debora f.b. leite.
I Departamento de Ginecologia e Obstetricia, Faculdade de Ciencias Medicas, Universidade Estadual de Campinas, Campinas, SP, BR
II Universidade Federal de Pernambuco, Pernambuco, PE, BR
III Hospital das Clinicas, Universidade Federal de Pernambuco, Pernambuco, PE, BR
Jose g. cecatti.
A sophisticated literature review (LR) can result in a robust dissertation/thesis by scrutinizing the main problem examined by the academic study; anticipating research hypotheses, methods and results; and maintaining the interest of the audience in how the dissertation/thesis will provide solutions for the current gaps in a particular field. Unfortunately, little guidance is available on elaborating LRs, and writing an LR chapter is not a linear process. An LR translates students’ abilities in information literacy, the language domain, and critical writing. Students in postgraduate programs should be systematically trained in these skills. Therefore, this paper discusses the purposes of LRs in dissertations and theses. Second, the paper considers five steps for developing a review: defining the main topic, searching the literature, analyzing the results, writing the review and reflecting on the writing. Ultimately, this study proposes a twelve-item LR checklist. By clearly stating the desired achievements, this checklist allows Masters and Ph.D. students to continuously assess their own progress in elaborating an LR. Institutions aiming to strengthen students’ necessary skills in critical academic writing should also use this tool.
Writing the literature review (LR) is often viewed as a difficult task that can be a point of writer’s block and procrastination ( 1 ) in postgraduate life. Disagreements on the definitions or classifications of LRs ( 2 ) may confuse students about their purpose and scope, as well as how to perform an LR. Interestingly, at many universities, the LR is still an important element in any academic work, despite the more recent trend of producing scientific articles rather than classical theses.
The LR is not an isolated section of the thesis/dissertation or a copy of the background section of a research proposal. It identifies the state-of-the-art knowledge in a particular field, clarifies information that is already known, elucidates implications of the problem being analyzed, links theory and practice ( 3 - 5 ), highlights gaps in the current literature, and places the dissertation/thesis within the research agenda of that field. Additionally, by writing the LR, postgraduate students will comprehend the structure of the subject and elaborate on their cognitive connections ( 3 ) while analyzing and synthesizing data with increasing maturity.
At the same time, the LR transforms the student and hints at the contents of other chapters for the reader. First, the LR explains the research question; second, it supports the hypothesis, objectives, and methods of the research project; and finally, it facilitates a description of the student’s interpretation of the results and his/her conclusions. For scholars, the LR is an introductory chapter ( 6 ). If it is well written, it demonstrates the student’s understanding of and maturity in a particular topic. A sound and sophisticated LR can indicate a robust dissertation/thesis.
A consensus on the best method to elaborate a dissertation/thesis has not been achieved. The LR can be a distinct chapter or included in different sections; it can be part of the introduction chapter, part of each research topic, or part of each published paper ( 7 ). However, scholars view the LR as an integral part of the main body of an academic work because it is intrinsically connected to other sections ( Figure 1 ) and is frequently present. The structure of the LR depends on the conventions of a particular discipline, the rules of the department, and the student’s and supervisor’s areas of expertise, needs and interests.
Interestingly, many postgraduate students choose to submit their LR to peer-reviewed journals. As LRs are critical evaluations of current knowledge, they are indeed publishable material, even in the form of narrative or systematic reviews. However, systematic reviews have specific patterns 1 ( 8 ) that may not entirely fit with the questions posed in the dissertation/thesis. Additionally, the scope of a systematic review may be too narrow, and the strict criteria for study inclusion may omit important information from the dissertation/thesis. Therefore, this essay discusses the definition of an LR is and methods to develop an LR in the context of an academic dissertation/thesis. Finally, we suggest a checklist to evaluate an LR.
Conducting research and writing a dissertation/thesis translates rational thinking and enthusiasm ( 9 ). While a strong body of literature that instructs students on research methodology, data analysis and writing scientific papers exists, little guidance on performing LRs is available. The LR is a unique opportunity to assess and contrast various arguments and theories, not just summarize them. The research results should not be discussed within the LR, but the postgraduate student tends to write a comprehensive LR while reflecting on his or her own findings ( 10 ).
Many people believe that writing an LR is a lonely and linear process. Supervisors or the institutions assume that the Ph.D. student has mastered the relevant techniques and vocabulary associated with his/her subject and conducts a self-reflection about previously published findings. Indeed, while elaborating the LR, the student should aggregate diverse skills, which mainly rely on his/her own commitment to mastering them. Thus, less supervision should be required ( 11 ). However, the parameters described above might not currently be the case for many students ( 11 , 12 ), and the lack of formal and systematic training on writing LRs is an important concern ( 11 ).
An institutional environment devoted to active learning will provide students the opportunity to continuously reflect on LRs, which will form a dialogue between the postgraduate student and the current literature in a particular field ( 13 ). Postgraduate students will be interpreting studies by other researchers, and, according to Hart (1998) ( 3 ), the outcomes of the LR in a dissertation/thesis include the following:
A sound LR translates the postgraduate student’s expertise in academic and scientific writing: it expresses his/her level of comfort with synthesizing ideas ( 11 ). The LR reveals how well the postgraduate student has proceeded in three domains: an effective literature search, the language domain, and critical writing.
All students should be trained in gathering appropriate data for specific purposes, and information literacy skills are a cornerstone. These skills are defined as “an individual’s ability to know when they need information, to identify information that can help them address the issue or problem at hand, and to locate, evaluate, and use that information effectively” ( 14 ). Librarian support is of vital importance in coaching the appropriate use of Boolean logic (AND, OR, NOT) and other tools for highly efficient literature searches (e.g., quotation marks and truncation), as is the appropriate management of electronic databases.
Academic writing must be concise and precise: unnecessary words distract the reader from the essential content ( 15 ). In this context, reading about issues distant from the research topic ( 16 ) may increase students’ general vocabulary and familiarity with grammar. Ultimately, reading diverse materials facilitates and encourages the writing process itself.
Critical judgment includes critical reading, thinking and writing. It supposes a student’s analytical reflection about what he/she has read. The student should delineate the basic elements of the topic, characterize the most relevant claims, identify relationships, and finally contrast those relationships ( 17 ). Each scientific document highlights the perspective of the author, and students will become more confident in judging the supporting evidence and underlying premises of a study and constructing their own counterargument as they read more articles. A paucity of integration or contradictory perspectives indicates lower levels of cognitive complexity ( 12 ).
Thus, while elaborating an LR, the postgraduate student should achieve the highest category of Bloom’s cognitive skills: evaluation ( 12 ). The writer should not only summarize data and understand each topic but also be able to make judgments based on objective criteria, compare resources and findings, identify discrepancies due to methodology, and construct his/her own argument ( 12 ). As a result, the student will be sufficiently confident to show his/her own voice .
Writing a consistent LR is an intense and complex activity that reveals the training and long-lasting academic skills of a writer. It is not a lonely or linear process. However, students are unlikely to be prepared to write an LR if they have not mastered the aforementioned domains ( 10 ). An institutional environment that supports student learning is crucial.
Different institutions employ distinct methods to promote students’ learning processes. First, many universities propose modules to develop behind the scenes activities that enhance self-reflection about general skills (e.g., the skills we have mastered and the skills we need to develop further), behaviors that should be incorporated (e.g., self-criticism about one’s own thoughts), and each student’s role in the advancement of his/her field. Lectures or workshops about LRs themselves are useful because they describe the purposes of the LR and how it fits into the whole picture of a student’s work. These activities may explain what type of discussion an LR must involve, the importance of defining the correct scope, the reasons to include a particular resource, and the main role of critical reading.
Some pedagogic services that promote a continuous improvement in study and academic skills are equally important. Examples include workshops about time management, the accomplishment of personal objectives, active learning, and foreign languages for nonnative speakers. Additionally, opportunities to converse with other students promotes an awareness of others’ experiences and difficulties. Ultimately, the supervisor’s role in providing feedback and setting deadlines is crucial in developing students’ abilities and in strengthening students’ writing quality ( 12 ).
A consensus on the appropriate method for elaborating an LR is not available, but four main steps are generally accepted: defining the main topic, searching the literature, analyzing the results, and writing ( 6 ). We suggest a fifth step: reflecting on the information that has been written in previous publications ( Figure 2 ).
Planning an LR is directly linked to the research main question of the thesis and occurs in parallel to students’ training in the three domains discussed above. The planning stage helps organize ideas, delimit the scope of the LR ( 11 ), and avoid the wasting of time in the process. Planning includes the following steps:
The ability to gather adequate information from the literature must be addressed in postgraduate programs. Librarian support is important, particularly for accessing difficult texts. This step comprises the following components:
In addition, two other approaches are suggested. First, a review of the reference list of each document might be useful for identifying relevant publications to be included and important opinions to be assessed. This step is also relevant for referencing the original studies and leading authors in that field. Moreover, students can directly contact the experts on a particular topic to consult with them regarding their experience or use them as a source of additional unpublished documents.
Before submitting a dissertation/thesis, the electronic search strategy should be repeated. This process will ensure that the most recently published papers will be considered in the LR.
This task is an important exercise in time management. First, students should read the title and abstract to understand whether that document suits their purposes, addresses the research question, and helps develop the topic of interest. Then, they should scan the full text, determine how it is structured, group it with similar documents, and verify whether other arguments might be considered ( 5 ).
Critical reading and thinking skills are important in this step. This step consists of the following components:
The recognition of when a student is able and ready to write after a sufficient period of reading and thinking is likely a difficult task. Some students can produce a review in a single long work session. However, as discussed above, writing is not a linear process, and students do not need to write LRs according to a specific sequence of sections. Writing an LR is a time-consuming task, and some scholars believe that a period of at least six months is sufficient ( 6 ). An LR, and academic writing in general, expresses the writer’s proper thoughts, conclusions about others’ work ( 6 , 10 , 13 , 16 ), and decisions about methods to progress in the chosen field of knowledge. Thus, each student is expected to present a different learning and writing trajectory.
In this step, writing methods should be considered; then, editing, citing and correct referencing should complete this stage, at least temporarily. Freewriting techniques may be a good starting point for brainstorming ideas and improving the understanding of the information that has been read ( 1 ). Students should consider the following parameters when creating an agenda for writing the LR: two-hour writing blocks (at minimum), with prespecified tasks that are possible to complete in one section; short (minutes) and long breaks (days or weeks) to allow sufficient time for mental rest and reflection; and short- and long-term goals to motivate the writing itself ( 20 ). With increasing experience, this scheme can vary widely, and it is not a straightforward rule. Importantly, each discipline has a different way of writing ( 1 ), and each department has its own preferred styles for citations and references.
In this step, the postgraduate student should ask him/herself the same questions as in the analyzing the results step, which can take more time than anticipated. Ambiguities, repeated ideas, and a lack of coherence may not be noted when the student is immersed in the writing task for long periods. The whole effort will likely be a work in progress, and continuous refinements in the written material will occur once the writing process has begun.
In contrast to review papers, the LR of a dissertation/thesis should not be a standalone piece or work. Instead, it should present the student as a scholar and should maintain the interest of the audience in how that dissertation/thesis will provide solutions for the current gaps in a particular field.
A checklist for evaluating an LR is convenient for students’ continuous academic development and research transparency: it clearly states the desired achievements for the LR of a dissertation/thesis. Here, we present an LR checklist developed from an LR scoring rubric ( 11 ). For a critical analysis of an LR, we maintain the five categories but offer twelve criteria that are not scaled ( Figure 3 ). The criteria all have the same importance and are not mutually exclusive.
1. justified criteria exist for the inclusion and exclusion of literature in the review.
This criterion builds on the main topic and areas covered by the LR ( 18 ). While experts may be confident in retrieving and selecting literature, postgraduate students must convince their audience about the adequacy of their search strategy and their reasons for intentionally selecting what material to cover ( 11 ). References from different fields of knowledge provide distinct perspective, but narrowing the scope of coverage may be important in areas with a large body of existing knowledge.
2. a critical examination of the state of the field exists.
A critical examination is an assessment of distinct aspects in the field ( 1 ) along with a constructive argument. It is not a negative critique but an expression of the student’s understanding of how other scholars have added to the topic ( 1 ), and the student should analyze and contextualize contradictory statements. A writer’s personal bias (beliefs or political involvement) have been shown to influence the structure and writing of a document; therefore, the cultural and paradigmatic background guide how the theories are revised and presented ( 13 ). However, an honest judgment is important when considering different perspectives.
The broader scholarly literature should be related to the chosen main topic for the LR ( how to develop the literature review section). The LR can cover the literature from one or more disciplines, depending on its scope, but it should always offer a new perspective. In addition, students should be careful in citing and referencing previous publications. As a rule, original studies and primary references should generally be included. Systematic and narrative reviews present summarized data, and it may be important to cite them, particularly for issues that should be understood but do not require a detailed description. Similarly, quotations highlight the exact statement from another publication. However, excessive referencing may disclose lower levels of analysis and synthesis by the student.
Situating the LR in its historical context shows the level of comfort of the student in addressing a particular topic. Instead of only presenting statements and theories in a temporal approach, which occasionally follows a linear timeline, the LR should authentically characterize the student’s academic work in the state-of-art techniques in their particular field of knowledge. Thus, the LR should reinforce why the dissertation/thesis represents original work in the chosen research field.
Distinct theories on the same topic may exist in different disciplines, and one discipline may consider multiple concepts to explain one topic. These misunderstandings should be addressed and contemplated. The LR should not synthesize all theories or concepts at the same time. Although this approach might demonstrate in-depth reading on a particular topic, it can reveal a student’s inability to comprehend and synthesize his/her research problem.
The LR is a unique opportunity to articulate ideas and arguments and to purpose new relationships between them ( 10 , 11 ). More importantly, a sound LR will outline to the audience how these important variables and phenomena will be addressed in the current academic work. Indeed, the LR should build a bidirectional link with the remaining sections and ground the connections between all of the sections ( Figure 1 ).
The LR is a ‘creative inquiry’ ( 13 ) in which the student elaborates his/her own discourse, builds on previous knowledge in the field, and describes his/her own perspective while interpreting others’ work ( 13 , 17 ). Thus, students should articulate the current knowledge, not accept the results at face value ( 11 , 13 , 17 ), and improve their own cognitive abilities ( 12 ).
8. the main methodologies and research techniques that have been used in the field are identified and their advantages and disadvantages are discussed.
The LR is expected to distinguish the research that has been completed from investigations that remain to be performed, address the benefits and limitations of the main methods applied to date, and consider the strategies for addressing the expected limitations described above. While placing his/her research within the methodological context of a particular topic, the LR will justify the methodology of the study and substantiate the student’s interpretations.
The audience expects the writer to analyze and synthesize methodological approaches in the field. The findings should be explained according to the strengths and limitations of previous research methods, and students must avoid interpretations that are not supported by the analyzed literature. This criterion translates to the student’s comprehension of the applicability and types of answers provided by different research methodologies, even those using a quantitative or qualitative research approach.
10. the scholarly significance of the research problem is rationalized.
The LR is an introductory section of a dissertation/thesis and will present the postgraduate student as a scholar in a particular field ( 11 ). Therefore, the LR should discuss how the research problem is currently addressed in the discipline being investigated or in different disciplines, depending on the scope of the LR. The LR explains the academic paradigms in the topic of interest ( 13 ) and methods to advance the field from these starting points. However, an excess number of personal citations—whether referencing the student’s research or studies by his/her research team—may reflect a narrow literature search and a lack of comprehensive synthesis of ideas and arguments.
The practical significance indicates a student’s comprehensive understanding of research terminology (e.g., risk versus associated factor), methodology (e.g., efficacy versus effectiveness) and plausible interpretations in the context of the field. Notably, the academic argument about a topic may not always reflect the debate in real life terms. For example, using a quantitative approach in epidemiology, statistically significant differences between groups do not explain all of the factors involved in a particular problem ( 21 ). Therefore, excessive faith in p -values may reflect lower levels of critical evaluation of the context and implications of a research problem by the student.
12. the lr was written with a coherent, clear structure that supported the review.
This category strictly relates to the language domain: the text should be coherent and presented in a logical sequence, regardless of which organizational ( 18 ) approach is chosen. The beginning of each section/subsection should state what themes will be addressed, paragraphs should be carefully linked to each other ( 10 ), and the first sentence of each paragraph should generally summarize the content. Additionally, the student’s statements are clear, sound, and linked to other scholars’ works, and precise and concise language that follows standardized writing conventions (e.g., in terms of active/passive voice and verb tenses) is used. Attention to grammar, such as orthography and punctuation, indicates prudence and supports a robust dissertation/thesis. Ultimately, all of these strategies provide fluency and consistency for the text.
Although the scoring rubric was initially proposed for postgraduate programs in education research, we are convinced that this checklist is a valuable tool for all academic areas. It enables the monitoring of students’ learning curves and a concentrated effort on any criteria that are not yet achieved. For institutions, the checklist is a guide to support supervisors’ feedback, improve students’ writing skills, and highlight the learning goals of each program. These criteria do not form a linear sequence, but ideally, all twelve achievements should be perceived in the LR.
A single correct method to classify, evaluate and guide the elaboration of an LR has not been established. In this essay, we have suggested directions for planning, structuring and critically evaluating an LR. The planning of the scope of an LR and approaches to complete it is a valuable effort, and the five steps represent a rational starting point. An institutional environment devoted to active learning will support students in continuously reflecting on LRs, which will form a dialogue between the writer and the current literature in a particular field ( 13 ).
The completion of an LR is a challenging and necessary process for understanding one’s own field of expertise. Knowledge is always transitory, but our responsibility as scholars is to provide a critical contribution to our field, allowing others to think through our work. Good researchers are grounded in sophisticated LRs, which reveal a writer’s training and long-lasting academic skills. We recommend using the LR checklist as a tool for strengthening the skills necessary for critical academic writing.
Leite DFB has initially conceived the idea and has written the first draft of this review. Padilha MAS and Cecatti JG have supervised data interpretation and critically reviewed the manuscript. All authors have read the draft and agreed with this submission. Authors are responsible for all aspects of this academic piece.
We are grateful to all of the professors of the ‘Getting Started with Graduate Research and Generic Skills’ module at University College Cork, Cork, Ireland, for suggesting and supporting this article. Funding: DFBL has granted scholarship from Brazilian Federal Agency for Support and Evaluation of Graduate Education (CAPES) to take part of her Ph.D. studies in Ireland (process number 88881.134512/2016-01). There is no participation from sponsors on authors’ decision to write or to submit this manuscript.
No potential conflict of interest was reported.
1 The questions posed in systematic reviews usually follow the ‘PICOS’ acronym: Population, Intervention, Comparison, Outcomes, Study design.
2 In 1988, Cooper proposed a taxonomy that aims to facilitate students’ and institutions’ understanding of literature reviews. Six characteristics with specific categories are briefly described: Focus: research outcomes, research methodologies, theories, or practices and applications; Goals: integration (generalization, conflict resolution, and linguistic bridge-building), criticism, or identification of central issues; Perspective: neutral representation or espousal of a position; Coverage: exhaustive, exhaustive with selective citations, representative, central or pivotal; Organization: historical, conceptual, or methodological; and Audience: specialized scholars, general scholars, practitioners or policymakers, or the general public.
Selecting a Research Topic
The first step in the process involves exploring and selecting a topic. You may revise the topic/scope of your research as you learn more from the literature. Be sure to select a topic that you are willing to work with for a considerable amount of time.
When thinking about a topic, it is important to consider the following:
Does the topic interest you?
Working on something that doesn’t excite you will make the process tedious. The research content should reflect your passion for research so it is essential to research in your area of interest rather than choosing a topic that interests someone else. While developing your research topic, broaden your thinking and creativity to determine what works best for you. Consider an area of high importance to your profession, or identify a gap in the research. It may take some time to narrow down on a topic and get started, but it’s worth the effort.
Is the Topic Relevant?
Be sure your subject meets the assignment/research requirements. When in doubt, review the guidelines and seek clarification from your professor.
What is the Scope and Purpose?
Sometimes your chosen topic may be too broad. To find direction, try limiting the scope and purpose of the research by identifying the concepts you wish to explore. Once this is accomplished, you can fine-tune your topic by experimenting with keyword searches our A-Z Databases until you are satisfied with your retrieval results.
Are there Enough Resources to Support Your Research?
If the topic is too narrow, you may not be able to provide the depth of results needed. When selecting a topic make sure you have adequate material to help with the research. Explore a variety of resources: journals, books, and online information.
Adapted from https://jgateplus.com/home/2018/10/11/the-dos-of-choosing-a-research-topic-part-1/
Why use keywords to search?
Now its time to decide whether or not to incorporate what you have found into your literature review. E valuate your resources to make sure they contain information that is authoritative, reliable, relevant and the most useful in supporting your research.
Remember to be:
Criteria for Evaluating Research Publications
Significance and Contribution to the Field
• What is the author’s aim?
• To what extent has this aim been achieved?
• What does this text add to the body of knowledge? (theory, data and/or practical application)
• What relationship does it bear to other works in the field?
• What is missing/not stated?
• Is this a problem?
Methodology or Approach (Formal, research-based texts)
• What approach was used for the research? (eg; quantitative or qualitative, analysis/review of theory or current practice, comparative, case study, personal reflection etc…)
• How objective/biased is the approach?
• Are the results valid and reliable?
• What analytical framework is used to discuss the results?
Argument and Use of Evidence
• Is there a clear problem, statement or hypothesis?
• What claims are made?
• Is the argument consistent?
• What kinds of evidence does the text rely on?
• How valid and reliable is the evidence?
• How effective is the evidence in supporting the argument?
• What conclusions are drawn?
• Are these conclusions justified?
Writing Style and Text Structure
• Does the writing style suit the intended audience? (eg; expert/non-expert, academic/non- academic)
• What is the organizing principle of the text?
Prepared by Pam Mort, Lyn Hallion and Tracey Lee Downey, The Learning Centre © April 2005 The University of New South Wales.
Analysis: the Starting Point for Further Analysis & Inquiry
After evaluating your retrieved sources you will be ready to explore both what has been found and what is missing . Analysis involves breaking the study into parts, understanding each part, assessing the strength of evidence, and drawing conclusions about its relationship to your topic.
Read through the information sources you have selected and try to analyze, understand and critique what you read. Critically review each source's methods, procedures, data validity/reliability, and other themes of interest. Consider how each source approaches your topic in addition to their collective points of intersection and separation . Offer an appraisal of past and current thinking, ideas, policies, and practices, identify gaps within the research, and place your current work and research within this wider discussion by considering how your research supports, contradicts, or departs from other scholars’ research and offer recommendations for future research.
Top 10 Tips for Analyzing the Research
Prepared by the fine librarians at California State University Sacramento.
Synthesis vs Summary
Your literature review should not simply be a summary of the articles, books, and other scholarly writings you find on your topic. It should synthesize the various ideas from your sources with your own observations to create a map of the scholarly conversation taking place about your research topics along with gaps or areas for further research.
Bringing together your review results is called synthesis. Synthesis relies heavily on pattern recognition and relationships or similarities between different phenomena. Recognizing these patterns and relatedness helps you make creative connections between previously unrelated research and identify any gaps.
As you read, you'll encounter various ideas, disagreements, methods, and perspectives which can be hard to organize in a meaningful way. A synthesis matrix also known as a Literature Review Matrix is an effective and efficient method to organize your literature by recording the main points of each source and documenting how sources relate to each other. If you know how to make an Excel spreadsheet, you can create your own synthesis matrix, or use one of the templates below.
Because a literature review is NOT a summary of these different sources, it can be very difficult to keep your research organized. It is especially difficult to organize the information in a way that makes the writing process simpler. One way that seems particularly helpful in organizing literature reviews is the synthesis matrix. Click on the link below for a short tutorial and synthesis matrix spreadsheet.
A literature review must include a thesis statement, which is your perception of the information found in the literature.
A literature review:
https://custom-writing.org/blog/best-literature-review
Organizing Your Literature Review
The structure of the review is divided into three main parts—an introduction, body, and the conclusion.
Introduction
Discuss what is already known about your topic and what readers need to know in order to understand your literature review.
Body
The discussion of your research and its importance to the literature should be presented in a logical structure.
Provide a concise summary of your review and provide suggestions for future research.
Writing for Your Audience
Writing within your discipline means learning:
Learn how to write in your discipline by familiarizing yourself with the journals and trade publications professionals, researchers, and scholars use.
Use our Databases by Title to access:
Click through the PLOS taxonomy to find articles in your field.
For more information about PLOS Subject Areas, click here .
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Open Access
Peer-reviewed
Research Article
Roles Conceptualization, Funding acquisition, Supervision, Writing – original draft
* E-mail: [email protected]
Affiliation Columbia University School of Nursing, New York, New York, United States of America
Roles Data curation, Formal analysis, Writing – review & editing
Roles Data curation, Writing – review & editing
Affiliation Department of Biomedical Informatics, Columbia University, New York, New York, United States of America
Roles Conceptualization, Writing – review & editing
Affiliation Department of Computer Science, Aalto University, Aalto, Finland
Affiliation University of Pennsylvania School of Nursing, Philadelphia, Pennsylvania, United States of America
Roles Conceptualization, Supervision, Writing – review & editing
Racism and implicit bias underlie disparities in health care access, treatment, and outcomes. An emerging area of study in examining health disparities is the use of stigmatizing language in the electronic health record (EHR).
We sought to summarize the existing literature related to stigmatizing language documented in the EHR. To this end, we conducted a scoping review to identify, describe, and evaluate the current body of literature related to stigmatizing language and clinician notes.
We searched PubMed, Cumulative Index of Nursing and Allied Health Literature (CINAHL), and Embase databases in May 2022, and also conducted a hand search of IEEE to identify studies investigating stigmatizing language in clinical documentation. We included all studies published through April 2022. The results for each search were uploaded into EndNote X9 software, de-duplicated using the Bramer method, and then exported to Covidence software for title and abstract screening.
Studies (N = 9) used cross-sectional (n = 3), qualitative (n = 3), mixed methods (n = 2), and retrospective cohort (n = 1) designs. Stigmatizing language was defined via content analysis of clinical documentation (n = 4), literature review (n = 2), interviews with clinicians (n = 3) and patients (n = 1), expert panel consultation, and task force guidelines (n = 1). Natural language processing was used in four studies to identify and extract stigmatizing words from clinical notes. All of the studies reviewed concluded that negative clinician attitudes and the use of stigmatizing language in documentation could negatively impact patient perception of care or health outcomes.
The current literature indicates that NLP is an emerging approach to identifying stigmatizing language documented in the EHR. NLP-based solutions can be developed and integrated into routine documentation systems to screen for stigmatizing language and alert clinicians or their supervisors. Potential interventions resulting from this research could generate awareness about how implicit biases affect communication patterns and work to achieve equitable health care for diverse populations.
Citation: Barcelona V, Scharp D, Idnay BR, Moen H, Cato K, Topaz M (2024) Identifying stigmatizing language in clinical documentation: A scoping review of emerging literature. PLoS ONE 19(6): e0303653. https://doi.org/10.1371/journal.pone.0303653
Editor: Guanghui Liu, State University of New York at Oswego, UNITED STATES
Received: April 13, 2023; Accepted: April 30, 2024; Published: June 28, 2024
Copyright: © 2024 Barcelona et al. This is an open access article distributed under the terms of the Creative Commons Attribution License , which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
Data Availability: All relevant data are fully publicly available; full citations and DOIs can be found in the "Data Availability Statement" supporting information file.
Funding: Columbia University Data Science Institute Seeds Funds Program (VB, MT, KC). https://datascience.columbia.edu/ The Gordon and Betty Moore Foundation (Grant number: GBMF9048) (VB, MT, KC). https://health.ucdavis.edu/nursing/NurseLeaderFellows/index.html The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript.
Competing interests: The authors have declared that no competing interests exist.
Racial and ethnic disparities in health care access, treatment, and outcomes have been documented for decades [ 1 ]. Prior studies have shown that concerns expressed by Black patients are more likely to be dismissed or ignored than White patients [ 2 ]. This differential treatment has been observed among Black and African American patients leading to disparities in outcomes, [ 1 , 3 , 4 ] and specifically in the treatment of cardiovascular diseases, [ 5 ] pain, [ 6 ] and breast cancer [ 7 ]. Racism occurring on the structural, interpersonal, or cultural levels has been identified as the primary reason for disparities in health outcomes [ 8 ]. Researchers have examined clinician biases by studying racial bias in patient-clinician interactions, finding that stereotyping and lack of empathy towards patients by race influenced health care outcomes [ 9 ].
Stigmatizing language has been defined as language that communicates unintended meanings that can perpetuate socially constructed power dynamics and result in bias [ 10 ]. Recent studies suggest that racial biases may also be identified by examining stigmatizing language in clinician notes documented in the electronic health record (EHR) [ 11 – 14 ]. Racial differences in documentation patterns may reflect unconscious biases and stereotypes that could negatively affect the quality of care [ 14 ]. Examples of stigmatizing language may include the use of quotations to identify disbelief in what the patient is reporting, questioning patient credibility, sentence construction that implies hearsay, and the use of judgment words [ 13 ]. Stigmatizing language in clinical notes has been associated with more negative attitudes towards the patient and less effective management of patient pain by physicians [ 14 ].
It is unknown to what extent and how stigmatizing language has been studied in healthcare settings, and study designs and foci differ. Emerging studies have used traditional qualitative methods, including interviews with patients and clinicians. Other research has used natural language processing (NLP), a computer science-based technique that helps extract meaning from large bodies of text, to quantify how EHR notes reflect stigmatizing language by race and ethnicity. The purpose of this scoping review was to identify, describe, and evaluate the presence and type of stigmatizing language in clinician documentation in the literature.
A scoping review was chosen instead of a systematic review as the purpose was to identify and map the emerging evidence [ 15 ]. This review was conducted using PRISMA-ScR guidelines for scoping reviews [ 16 ].
Search strategy.
The authors discussed the selection and coverage of three concepts (i.e., stigmatizing language, clinician, and clinical documentation) for review based on the research question. For purposes of the current study, the concept of “clinician” includes physicians and nurses. We searched PubMed, Cumulative Index of Nursing and Allied Health Literature (CINAHL), and Embase databases in May 2022 to identify studies investigating stigmatizing language in clinical documentation. We also conducted an updated hand-search of the IEEE Explore database for articles published through April 2022. However, we did not identify additional articles that met inclusion criteria and were not already included in our review. The results for each search were uploaded into EndNote X9 software, de-duplicated using the Bramer method [ 17 ], and then exported to Covidence software for title and abstract screening. The search strategy is detailed in S1 Table .
The initial search yielded 1,482 articles for review. After de-duplication, 897 articles were included for title and abstract screening. Two authors (BI, DS) independently screened all articles by title and abstract and documented reasons for exclusion, when applicable. Studies were included if they investigated stigmatizing language in clinical documentation. Studies that looked into stigmatizing language with patient-provider interaction that did not include documentation (e.g., verbal communication) were excluded. Articles not in English, review articles, editorials, commentaries, and articles without full-text availability were also excluded. The same reviewers independently assessed all potentially relevant articles in the full-text review to comprehensively determine eligibility for inclusion, as well as searching reference lists for additional articles. Discrepancies were discussed with the team to achieve consensus. From the 40 articles included for full-text review, nine articles were included for final synthesis ( Fig 1 ).
https://doi.org/10.1371/journal.pone.0303653.g001
Relevant information categories from each included article were extracted by two authors (BI, DS). Two other co-authors with expertise in health informatics (MT, HM) reviewed and validated all the extracted data elements. These information categories included: authors, year of publication, study aim and design, clinical setting, data source, clinician specialty, clinical note type (when available), study population, number of clinical notes used, data analysis approach, outcomes, and stigmatizing language identified. The Mixed Methods Appraisal Tool (MMAT) [ 18 ] was used to evaluate study quality and the risk of bias in the included articles.
Nine articles meeting all inclusion criteria were included in this scoping review ( Table 1 ). Overall, study designs (N = 9) included cross-sectional (n = 3), [ 11 – 13 ] qualitative (n = 3), [ 19 – 21 ] mixed methods (n = 2), [ 22 , 23 ] and retrospective cohort (n = 1) [ 24 ]. Studies took place in exclusively inpatient (n = 3) [ 12 , 19 , 24 ] or outpatient (n = 4) [ 13 , 21 – 23 ] settings. One study was conducted in an emergency department (ED) (n = 1), [ 20 ] and another included participants from inpatient, outpatient, and ED settings (n = 1) [ 11 ]. In terms of patient population, six focused on general medicine, [ 11 – 13 , 19 , 21 , 23 ] and one article each on oncology, [ 22 ] psychiatry, [ 24 ] and pediatrics [ 20 ].
https://doi.org/10.1371/journal.pone.0303653.t001
Methods for measuring and defining stigmatizing language varied by study. Specifically, stigmatizing language was identified via interviews with clinicians [ 19 , 20 , 22 ] and patients, [ 19 ] content analysis of clinical documentation, [ 13 , 21 , 23 , 24 ] literature review, [ 11 , 12 ] expert panel consultation, [ 11 ] and task force guidelines from relevant professional organizations [ 12 ]. Definitions of stigmatizing language or bias varied as well by study, with most studies focusing on discipline-specific words communicating judgment or negative bias ( Table 1 ). Stigmatizing language often included stereotyping by race and ethnicity. An example found in clinician documentation in the EHR was in the form of quotes highlighting “unsophisticated” patient language, i.e., “…patient states that the wound ‘busted open’” [ 21 ]. Another study found that physician notes written about Black patients had up to 50% higher odds of containing evidentials (language used by the writer questioning the veracity of the patient’s words) and stigmatizing language than those of White patients [ 13 ]. Similarly, physicians documented more negative feelings such as disapproval, discrediting, and stereotyping toward Black patients than White patients [ 21 ].
Often, clinical documentation studied was in the form of clinical notes. The most commonly analyzed clinical notes included those documented by physicians (n = 3), [ 12 , 13 , 22 ] followed by nurses (n = 1), [ 24 ] advanced practice providers (n = 1), [ 12 ] and interdisciplinary team members including radiologists, respiratory therapists, nutritionists, social workers, case managers, and pharmacists (n = 1). Sun et al. examined history and physical notes written by medical providers, although no further detail about the type of providers was specified [ 11 ].
Reporting of race and ethnicity of study participants varied widely. In three studies, race was not specified at all, [ 20 , 22 , 24 ] or studies reported only White and Black participant races (n = 2) [ 13 , 21 ]. Two studies described findings by race and ethnicity, including Black (or African American), Hispanic, White, and Asian categories [ 12 , 23 ]. The remaining studies either reported race and ethnicity as: White, Black or Hispanic, [ 11 ] or White or Hispanic [ 19 ].
Studies that conducted interviews focused on how clinical notes were written and may be interpreted by patients, [ 22 ] barriers and facilitators to providing care, [ 19 ] patients’ perceptions of their hospitalization, [ 19 ] and clinician insights on racial bias and EHR documentation [ 20 ]. Qualitative themes identified related to stigmatizing language included a reluctance to describe patients as “difficult” or “obese” due to the social stigma attached to common medical language, [ 22 ] intentional and unintentional perpetration of stigma in clinical notes, [ 19 ] and identification of potential racial bias through documentation [ 20 ].
In terms of methods, four studies used NLP [ 11 – 13 , 22 ] to extract terms from clinical notes matching those in predefined vocabularies of stigmatizing language terms. After NLP, statistical analyses were conducted to calculate and compare the odds of stigmatizing language occurrence among different patient populations. Two of the NLP-based studies used Linguistic Inquiry and Word Count (LIWC: a standardized vocabulary of terms), while others created their own hand-crafted vocabularies. One of the studies that involved the use of NLP [ 11 ] developed a machine learning classifier that would automatically detect stigmatizing language. This was the only study that measured the accuracy of automated NLP-based stigmatizing language detection and found it very accurate (F1 score = 0.94).
Despite a wide variety of clinical settings in the reviewed studies, negative language, bias, racial bias, or stigmatizing language was identified in clinician attitudes and/or documentation across all studies that could negatively impact patient perception or outcomes. Disparities in stigmatizing language use in the EHR were evident by race and ethnicity both in clinician interviews [ 20 , 22 , 24 ] and analyses of clinical notes [ 11 – 13 , 19 , 21 , 23 ]. There may be discipline-specific stigmatizing language and terms [i.e., addiction [ 19 ]] and paternalistic attitudes that state that clinical notes are for clinician communication and not for patients to read [i.e., oncology [ 22 ]] that warrant further investigation.
In Table 2 , results of the study quality assessments are presented. All studies asked clear research questions and collected data to address the research questions. Among quantitative studies (n = 4), three met all five criteria for quality, and the remaining study did not adequately describe measurement, confounders, or intervention fidelity. The qualitative studies (n = 3) met the criteria for four of five quality components assessed, with two studies lacking an explicit discussion of the qualitative approach. Neither mixed methods studies (n = 2) met all quality criteria, as one did not include an adequate rationale for using this design, the other study did not discuss inconsistencies between quantitative and qualitative results, and both did not adhere to all criteria for quantitative and/or qualitative methods.
https://doi.org/10.1371/journal.pone.0303653.t002
In this review, we identified the types and frequency of stigmatizing language in EHR notes, establishing an underpinning for future research on the correlation between communication patterns and outcomes (i.e., hospitalization, mortality, complications, disease stability, symptom control). With continuous advancements in the field of NLP, we believe that these methods (including deep learning-based methods) will be essential tools in future stigmatizing language studies.
It is crucial to evaluate NLP-based system performance to ensure accurate concept identification and reliable results; however, this was only done in one study [ 11 ]. Further studies that use NLP are needed that evaluate the accuracy of the resulting NLP systems and to ensure stigmatizing language is identified correctly. The two studies reviewed here that used NLP did not assess clinical relevance, limiting their findings. In addition to accurate stigmatizing language identification, clinical relevance must be assessed to determine to what extent NLP systems are useful for predicting the association between language use and clinical outcomes. Finally, there is a gap in the literature for NLP-specific bias assessment. There is a need for further development of NLP for identifying stigmatizing language, as these methods may not detect all stigmatizing language, and outcomes may be driven by the level of bias among annotators. Quality from training data is vital in algorithm development, and more research should be done describing biases of people performing annotation. This type of acknowledgment is increasingly common in journals where authors are required to submit positionality statements, however, we suggest that this go further for annotators, as life experiences influence assessments of whether bias or stigma is present. We did not do a specific evaluation of the NLP-only studies, due to the small number. However, further studies should be done to evaluate the quality of NLP studies and the validity of NLP results. Specific criteria for this domain should be developed.
The identification of stigmatizing language use in EHR notes is vital as this language may foster the transmission of bias between clinicians and may represent a value judgment of the intrinsic worth assigned to a patient [ 11 ]. Further, with the passage of The 21 st Century Cures Act in the US, federal policy now requires the availability of clinical notes to patients [ 25 ]. Clinical notes that reflect clinician bias may harm the patient-clinician relationship and hinder or damage the establishment of trust required for positive interactions in health care settings. Medical mistrust is a persistent problem contributing to delays in seeking care and widening disparities in disease outcomes for many vulnerable populations, [ 26 ] hence efforts are needed to improve the current situation.
Definitions of stigmatizing language varied in the studies reviewed, and also represent an area for future research. Stigmatizing language may best be defined by the vulnerable populations at risk, in partnership with researchers. Further, discipline-specific language should be discussed and agreed upon, as this may vary by patient population. For example, guidelines have been suggested for addressing the intersectional nature of language in the care of birthing people [ 27 ].
Three studies reviewed here did not specify race or ethnicity of their clinician and patient participants [ 20 , 22 , 24 ]. This is a significant issue as patient-clinician race discordance has been associated with increased risk of mortality [ 28 ]. Racial concordance, however, does not necessarily lead to better communication as perceived by patients [ 29 ]. Given the inconsistency in reporting of race and ethnicity in the reviewed studies, future research in this area should carefully operationalize and define race and ethnicity variables extracted from the EHR. In addition, studies whose primary focus was to identify bias did not blind for patient race, as in many cases race was considered a primary predictor or variable of interest. This underscores an important gap in the literature for NLP-specific bias assessment. Blinding sensitive categories when screening records for bias may improve validity of outcome ascertainment, however, it is often necessary for reviewers to rely on context and include categories such as race and ethnicity when evaluating for stigmatizing language.
The measurement of race is a contentious issue in many medical and scientific disciplines, and though it is a social construction with no biological basis, it remains an indicator of likelihood of encountering racism and racist structures that lead to health disparities. EHR demographic data have been shown to have several quality issues, with some studies indicating that data from Latinos having higher rates of misclassification than other racial/ethnic groups [ 30 ]. It is important to consider who enters race and ethnicity data in the EHR, as patient self-identification is often used as the “gold-standard” in research, yet the patient’s apparent phenotype may be an even more important predictor of clinician perception and subsequent clinical documentation. Indeed, recent work has identified that patient race can be predicted using machine learning algorithms applied to other clinical indicators from the EHR [ 31 – 33 ]. From a validity and reliability perspective, researchers must align their methodological definition of race and ethnicity with the stated research objectives. Further, consistent definitions of racial and ethnic categories are essential to identifying associations between stigmatizing language use and patient outcomes as future studies developing interventions are considered. Future research should include larger proportions of minoritized patient and clinician participants to elucidate these issues further, and examine the underlying factors associated with poorer outcomes in various healthcare settings.
Finally, six of the studies reviewed [ 12 , 13 , 19 – 22 ] included physicians, and many included other health care provider types (i.e. nurses, respiratory therapists, pharmacists, etc.) either alone [ 24 ] or in addition to physician notes/participants [ 12 , 19 , 20 ]. Limited information was provided about the type of notes that were analyzed. Further detail about the type of clinicians and notes would allow for the identification of what other disciplines are reading or writing to draw conclusions about the transmission of bias over the trajectory of patient care.
There are several opportunities for policy change to address the use of stigmatizing language in clinical documentation. First, stigmatizing language can be identified automatically with NLP. NLP-based solutions can be developed and integrated into routine documentation systems to screen for stigmatizing language and alert clinicians or their supervisors. Previously published instances of flags in EHR documentation have provided evidence of improved outcomes of care, including in diagnosis of stroke, increasing health care access for patients at risk of suicide, and improving community rates of Hepatitis C screening for those at high risk [ 34 – 36 ]. To our knowledge, NLP findings of stigmatizing language use in the EHR has not yet been applied to clinical practice, identifying a need for future research that could lead to practice and policy change.
Second, clinicians’ less than optimal working conditions may contribute to burnout and negative language use toward patients. One study found that resident physicians who reported higher levels of burnout had greater explicit and implicit racial biases [ 37 ]. Individually-focused interventions for clinicians, such as mindfulness training, have also been suggested as a method to reduce bias in clinical care, [ 38 ] but have yet to be evaluated. A study carried out on nurses in Taiwan suggested that workplace burnout was associated with poorer patient care outcomes, though stigmatizing language was not examined [ 39 ]. The COVID-19 pandemic has also contributed to moral injury for nurses, affecting patient care [ 40 ]. Burnout does not foster an environment where clinicians can foster and sustain empathy for patients, and empathy is a critical component of reducing bias and building support for antiracism efforts to reduce inequities [ 41 , 42 ] Antiracism and bias efforts in hospitals should include analyzing if clinician burnout is associated with stigmatizing language use in EHR documentation, and if it reinforces bias between clinicians, potentially contributing to health inequities.
In summary, this review highlights a new and promising application of qualitative research and NLP to clinical documentation in the study of racial and ethnic disparities in health care. We suggest that further research be done applying NLP to identify stigmatizing language, with the ultimate goal of reducing clinicians’ stigmatizing language use in health documentation. By improving identification of stigmatizing language through NLP and other methods, potential interventions can be developed to generate awareness and design educational interventions about how implicit biases affect communication patterns and work to achieve equitable health care for diverse populations.
S1 checklist. preferred reporting items for systematic reviews and meta-analyses extension for scoping reviews (prisma-scr) checklist..
https://doi.org/10.1371/journal.pone.0303653.s001
https://doi.org/10.1371/journal.pone.0303653.s002
https://doi.org/10.1371/journal.pone.0303653.s003
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npj Digital Medicine volume 7 , Article number: 173 ( 2024 ) Cite this article
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The World Health Organisation advocates Digital Health Technologies (DHTs) for advancing population health, yet concerns about inequitable outcomes persist. Differences in access and use of DHTs across different demographic groups can contribute to inequities. Academics and policy makers have acknowledged this issue and called for inclusive digital health strategies. This systematic review synthesizes literature on these strategies and assesses facilitators and barriers to their implementation. We searched four large databases for qualitative studies using terms relevant to digital technology, health inequities, and socio-demographic factors associated with digital exclusion summarised by the CLEARS framework (Culture, Limiting conditions, Education, Age, Residence, Socioeconomic status). Following the PRISMA guidelines, 10,401 articles were screened independently by two reviewers, with ten articles meeting our inclusion criteria. Strategies were grouped into either outreach programmes or co-design approaches. Narrative synthesis of these strategies highlighted three key themes: firstly, using user-friendly designs, which included software and website interfaces that were easy to navigate and compatible with existing devices, culturally appropriate content, and engaging features. Secondly, providing supportive infrastructure to users, which included devices, free connectivity, and non-digital options to help access healthcare. Thirdly, providing educational support from family, friends, or professionals to help individuals develop their digital literacy skills to support the use of DHTs. Recommendations for advancing digital health equity include adopting a collaborative working approach to meet users’ needs, and using effective advertising to raise awareness of the available support. Further research is needed to assess the feasibility and impact of these recommendations in practice.
Introduction.
The World Health Organisation (WHO) advocates Digital Health Technologies (DHTs) to advance population health 1 . Digital health can be defined as the use of information and communication technologies within healthcare to provide healthcare users with services relating to the prevention, detection, diagnosis and management of diseases and other health conditions 2 , 3 , 4 . Examples of DHTs include smartphone applications and wearable monitoring devices that can empower people to better manage their own conditions, such as keeping track of symptoms or remotely monitoring their condition(s) over time 2 , 3 , 4 . DHTs can pick up signs of deterioration in healthcare users’ symptoms longitudinally and provide real-time data to healthcare professionals to help support tailored clinical decision making 4 . DHTs can also enable individuals with mobility issues and those living in rural areas to access healthcare. Digital health has gained global momentum due to its potential to contribute to personalised health care for patients, improved quality of care, and lower healthcare costs 5 , 6 .
However, there are growing concerns that DHTs may not lead to health benefits in all populations, with underserved groups (i.e., those typically left out of research or experience inadequate access to healthcare) at particular risk 7 . One possible factor contributing to this is digital exclusion, denoting disparities in motivation, access and use of DHTs across different demographic groups 8 . Digital exclusion can potentially create a barrier for various underserved groups, such as those who are on a low income, are not fluent in English, or homeless, thus exacerbating health inequities for these groups 9 . Individuals with visual impairment may also find on-screen reading challenging and many older adults with hearing impairments have expressed low motivation to use phone calls as a remote option to access healthcare due to their disability 10 .
Technology has advanced rapidly over recent years, with some DHTs (e.g., telehealth services, mobile phones, wearable devices, smartphone apps and other software) having greater relevance to the direct inequities underserved groups face compared to other DHTs. For example, DHTs designed to be solely used by healthcare professionals (e.g., electronic patient records) are less likely to directly impact healthcare service users, and so it is prudent to focus on DHTs that underserved groups may be asked to use. Qualitative studies gathering rich in-depth experiences from those whose voices are rarely heard (i.e., underserved groups) 11 , 12 will provide valuable insights into the facilitators and barriers regarding access, motivated and/or use of DHTs.
The WHO Bellagio eHealth Evaluation Group (2019) recognised the need to mitigate digital exclusion 13 , with organisations such as NICE (National Institute for Health and Care Excellence) requiring evidence that health inequities have been considered in the design of DHTs 2 . This includes important aspects of design, development or implementation of a DHT that support digital inclusivity, such as strategies to increase an individual’s access to suitable devices or connectivity, and educational support in digital literacy to increase DHT use 14 . To support the development of such strategies, it is vital to understand the needs of underserved groups as well as their experiences and perspectives of these strategies to identify what does and does not support digital inclusivity. However, there is currently no qualitative systematic review of key strategies conducted in this area; a key knowledge gap in the literature. To advance digital health equity, we aimed to systematically synthesise the literature on what key strategies have been used to promote digital inclusivity, and assess the facilitators and barriers to implementing and adopting these in practice based on underserved groups’ experiences and perspectives.
Our search yielded 13,216 results. After removing duplicates ( n = 2815), titles ( n = 10,401) abstracts ( n = 1224) and full-texts ( n = 143) were screened. Ten papers met our inclusion criteria (Fig. 1 ). Inter-reviewer reliability was high with 99.33% agreement at title stage, 99.43% at abstract stage, and 97.89% at full-text stage. All included studies were found to have moderate- to high-quality levels (Supplementary Tables 7 and 8 ). None of the included studies measured or reported any participants’ health literacy.
A PRIMSA flow chart detailing our search and selection process applied during the article screening process.
Included studies incorporated a range of participants at risk of digital exclusion, including those from different cultural backgrounds (ethnic diversity, languages and religion) ( n = 8) 15 , 16 , 17 , 18 , 19 , 20 , 21 , 22 , 23 , those with limiting conditions (visual and hearing impairments) ( n = 2) 21 , 22 , low educational attainment ( n = 4) 15 , 19 , 20 , 21 , aged over 65 ( n = 4) 16 , 20 , 21 , 22 , homeless ( n = 2) 19 , 24 , and those who had low socioeconomic status ( n = 5) 15 , 16 , 17 , 18 , 21 (Supplementary Table 9 ). All 10 studies used interviews 15 , 16 , 17 , 18 , 19 , 20 , 21 , 22 , 23 , 24 , with two studies also conducting focus groups with participants 18 , 21 . (Supplementary Table 10 ). Inclusive digital health strategies were grouped into either outreach programmes providing educational support and/or access to devices ( n = 2) 19 , 22 , or co-designing DHTs with underserved groups ( n = 8) to gain feedback on the usability and acceptability of DHT to enhance inclusivity in future versions of the DHT (Table 1 ) 15 , 16 , 17 , 18 , 20 , 21 , 23 , 24 .
Our narrative thematic synthesis generated three overarching themes; user-friendly designs (e.g., software and website design elements that promoted inclusivity), infrastructure (e.g., access to DHTs) and educational support (e.g., training to develop digital literacy skills required to use DHTs) (Supplementary Table 10 ). Facilitators and barriers to the adoption of these themes are embedded in the discussion below and summarised in Fig. 2 .
Summary of the key facilitators and barriers to strategies to support digital health equity (using a user-friendly design, providing infrastructure and providing educational support) alongside the specific CLEARS groups the strategy will support.
User-friendly designs were a key theme supporting access and use of DHTs across seven studies 15 , 16 , 20 , 21 , 22 , 24 . Health-related software and websites needed to be compatible across different digital platforms, operating systems and devices including smartphones and desktops, and assistive technologies (e.g., screen reading software) to accommodate the needs of ethnically and linguistically diverse groups 17 , 18 , 22 , individuals with limiting conditions (visual and hearing impairments) 20 , 21 , older adults (+65 years) 20 , 22 , those with low educational attainment and low socioeconomic status 17 , 18 . For example, Yeong et al. noted how older adults with visual impairments and of low socioeconomic status needed websites to be compatible with different magnification levels and assistive technologies (e.g., iOS Voiceover [Apple Inc]; a screen reading software) to aid visibility 21 . The authors also noted how certain features aided navigation and minimised scrolling to help the user find information, such as tables of contents, drop-down menus, and ‘jump to top’ buttons 21 . Older adults with limiting conditions (visual or hearing) also suggested that navigation features, such as search bars and hyperlinks, needed to be of high contrast (compared to the rest of the screen) to improve visibility 20 , 21 . Yeong et al. emphasised how search features should be designed in a similar way to commonly visited search engines, like Google, to improve usability and reduce confusion 21 .
Older adults, homeless, ethnically diverse individuals and those with visual impairments all described how digital messages on software, health related websites or text messages should be simple, concise, and presented in a logical manner without time restrictions 18 , 20 , 21 , 24 . For example, older adults with visual impairments described how they did not have enough time to read the information when presented on a timed loop (i.e., rotating between different screens with information), and suggested that the user be able to manually control the timing of this loop 21 . Older adults interviewed in another study described how it would be useful if they could change the font size to improve the visibility of the text, and provide alternative languages for those who are not fluent in English 22 . Personalising information, such as allowing users to choose content that they are interested in, was felt to be one way of increasing the motivation to use health related websites and software amongst those with visual impairments 21 and ethnically diverse individuals 18 . Additionally, providing evidence that supported the key messages in healthcare information, such as the importance of reducing alcohol intake to reduce the risk of developing chronic health conditions, enhanced trust amongst ethnically diverse individuals 18 . Kramer et al. also emphasised how any communication should be culturally appropriate and avoid reinforcing stereotypes, especially for ethnically and linguistically diverse users 18 . For example, the language used to categorise different ethnicities on DHTs should avoid generic terms such as ‘men of colour’ as some ethnically diverse men found this offensive; they felt it defined them based on their skin colour and not their ethnic background. Instead, specific terminology should be used that accurately represented their ethnicities (e.g., African American for individuals with an African and American descent) 18 . Any imagery should also be inclusive to all cultural groups 18 .
It was felt that the overall user friendliness and engagement of health related software could be improved with the addition of engaging features 15 , 18 , 20 , 22 , 24 . This included interactive quiz elements 20 , notifications encouraging behavioural changes 18 , reminders about upcoming appointments (particularly for homeless individuals as this they may not have access to other reminders, like letters) 24 , ability to order a repeat prescription and schedule specific appointments (e.g., physiotherapy) 22 . Older adults of Jewish faith also suggested simplifying security features, as many found flicking between a text message with the password reset information and the screen (where the information should be entered) challenging 22 .
Five studies described the need for supportive infrastructure, such as access to devices and connectivity (i.e., Wi-Fi) to support homeless individuals, ethnically and linguistically diverse groups, and individuals of low socioeconomic status 15 , 17 , 19 , 23 , 24 . For example, Howell et al. explained how community nurses in the UK provided homeless individuals with temporary access to smartphones during the pandemic so as to enable them to access vital digital healthcare support 19 . In the United States (US), homeless individuals were provided with phones (the Obama phone), credit and data plans financed through a government programme 24 . However, Asgary et al. found that some of these homeless individuals using the Obama phone plan often exceeded their limits when put on hold to schedule medical appointments 24 . They subsequently turned to friends and family for financial support to purchase credit 24 . Other homeless individuals were hesitant to accept this government support, with the authors reflecting on how this may have been due to the homeless experiencing a lack of government financial aid in the past 24 .
Homeless individuals 19 , ethnically and linguistically diverse groups 15 , 17 , 23 , and those of low educational attainment and low socioeconomic status 15 , 17 , 19 reported relying heavily on free Wi-Fi to be able to access healthcare. This included accessing free Wi-Fi in public spaces and transport systems, fast-food restaurants, clinics and families’ houses. However, they often experienced barriers to this connectivity with time limits set by the specific organisations (e.g., opening hours) 15 or restrictions placed on using shared devices (e.g., computer keyboards due to the risk of coronavirus spreading) 19 . Many participants suggested creating dedicated centres for digital health services with suitable devices and free Wi-Fi that would also include some private areas 15 . Access to these private spaces was felt to be important for some ethnic and linguistically diverse groups with low educational attainment and socioeconomic status, as they were concerned about being overheard when discussing/looking at confidential health information 17 . Many groups suggested that they would like the choice between both digital and non-digital access to healthcare, as this would help mitigate the risk of possibly excluding those with poor digital literacy skills, those who would prefer in-person consultations, or those who lack the resources to access digital healthcare 15 , 18 , 19 , 23 .
To complement infrastructural changes, ethnically diverse adults based in the US advocated for more resources to be provided by local government 15 . This included the introduction of new policies, such as reduced payment plans and regulations on the price of DHTs for lower income earners to make them affordable 15 . Older adults of Jewish faith and ethnically diverse adults with a low educational attainment and socioeconomic status also suggested that financial incentives could help promote greater access to DHTs and encourage motivation to use DHTs 15 , 22 . Alkureishi et al. highlighted how different organisations, such as hardware and Wi-Fi companies, might need to collaborate to ensure that these different components (e.g., devices, connectivity, financial aid) are jointly available to support successful implementation 15 .
Provision of educational support was important for ethnically diverse individuals and older adults to enable their use of DHTs in five studies 15 , 16 , 19 , 20 , 22 . Ethnically diverse individuals with lower educational attainment and low socioeconomic status, and older adults of Jewish faith commonly reported asking family members to remain close during video healthcare consultations in case of technical issues 15 , or for their guidance with accessing online health information 22 . Mizrachi et al. found this support promoted independence over time as older adults’ digital skills developed through learning and they were further motivated to use DHTs on hearing positive experiences from their family and friends 22 .
Some individuals relied on educational support from professional services to use DHTs 19 . It was felt that in-person educational support from community workers or health care professionals with supplementary materials (e.g., videos and written information) would be beneficial prior to attending virtual appointments to support ethnically diverse adults (both above and below 65 years) from a low socioeconomic status and low educational attainment 15 , 16 Alternatively, Alkureishi et al. noted some participants expressed preference for accessing training classes at healthcare sites (e.g., hospitals) and community centres, where support was provided by ‘technology champions and coaches’ 15 . However, older adults of Jewish faith highlighted how advertisements to promote awareness of support services would be unlikely to reach individuals in their community and those who were socially isolated and arguably most in need of support 22 . Some studies also highlighted how certain groups (e.g., ethnically diverse adults with low socioeconomic status and low educational attainment, and older adults of Jewish faith) might also be reluctant to accept this educational support due to concerns around burdening others, feeling helpless, and/or reaffirming how they are unable to do something independently 15 , 22 .
This systematic review synthesises strategies that promote digital inclusivity and assess the barriers and facilitators to adopting these in practice. Our findings highlighted three key themes relating to user-friendly designs, supportive infrastructure, and provision of educational support. Barriers to adopting these strategies included a lack of acceptance amongst some underserved groups to receive such support, whilst facilitators included promoting trust amongst ethnically diverse groups by providing lay term friendly evidence that supports health claims.
Our findings highlighted how health-related software and websites must be interoperable across different devices to accommodate the needs of underserved groups. This form of user-friendly design is advocated by national healthcare providers and government bodies; for example, the UK and US have legislation in place which mandates that websites and software in the public sector be ‘perceivable, operable, understandable and robust’ to ensure that those with visual and hearing impairments, low reading ability (reading age of 9) and/or those who are not fluent in English can access and understand the information provided 25 , 26 . However, a recent study reported that public health authority websites in only three countries (UK, Italy, China) out of a total of 24 actually adhered to these accessibility standards when checked 27 . Additionally, the wider literature supports our findings on how the use of appropriate language and imagery can improve end-user satisfaction 18 , 28 . National bodies, such as the US National Institute of Health (NIH), have developed the ‘National Culturally and Linguistically Appropriate Services (CLAS) Standards’ to assist developers and researchers in developing culturally and linguistically appropriate services 29 . The wider literature also suggests co-designing DHTs with underserved groups at the earliest stages to help ensure that they meet the needs of all end-users 30 . This involves co-designing security features that are easy-to-use and align with the UK government ‘ secure by design principles’ , to help overcome any potential future barriers to usage 31 , 32 .
Our results also highlighted the need for supportive infrastructure to facilitate access and use of DHTs. Government schemes in high-income countries are already available; for example, the ‘Obama phone’ in the USA and the Emergency Broadband Benefits and social tariffs (reduced payment phone plans) in the UK, to support those on a low income to access smartphones and phone plans 24 , 33 . However, implementing supportive infrastructure might not be viable for low to middle income countries as they may have less suitable centres to provide devices and free public Wi-Fi spots, which high income countries already have access to 34 . Some charity organisations, such as the Good Things Foundation, have started to repurpose donated corporate IT devices and deliver them to those who are digitally excluded 35 . However, better promotion of the support available and a collaborative working environment is needed, especially by healthcare professionals, social services, and charities. Free phone numbers would also help to facilitate access to healthcare services. Some underserved groups would like the option of accessing healthcare via non digital means, thus questioning the temptation to always use technology to potentially address healthcare challenges 36 . Researchers need to consider whether a new DHT will provide an equitable solution to the healthcare problem and whether other means of accessing healthcare should also be provided within healthcare systems 37 .
This systematic review also underlined the importance of providing educational support, from family or professional services, to encourage motivation and capability to use DHTs. There is a need for effective advertising of this support to groups at particular risk of both digital and social exclusion, such as older adults and homeless individuals, in order to increase their awareness 38 . A systematic review conducted by Ige et al. 39 suggested using a combination of two or more strategies to reach socially isolated individuals, including referrals from relevant agencies (e.g., GPs, pharmacists etc), as this might be a more effective approach than relying solely on public facing methods 39 .
Previous recommendations to promote digital health equity have centred around guidance for behavioural and social science researchers with limited insight to the facilitators and barriers to implementing strategies into society and appear limited to research settings 40 . Previous reviews have applied the socioeconomic model to inform recommendations to promote digital health equity, such as providing devices (individual level support), educational support (relationship/interpersonal level support), access to connectivity infrastructure (community level support) and implementing policies (societal level support) 41 , 42 . However, there has been little consideration given to those individuals who belong to two or more underserved groups at risk of digital exclusion. Our systematic review considered this intersectionality and provides practical recommendations that focus on two main areas: collaborative working and effective advertising (Fig. 3 ). Collaborative working between the DHT developer, healthcare professionals, policy-makers, voluntary sectors, patients and public members of underserved groups is vital to help improve the co-design of DHTs and provision of support and should be embedded from the very beginning of the design and development process 30 . Effective advertising strategies are also vital to raise public awareness and ensure that those who are, or know of an individual, at risk of digital exclusion are made aware of in-person support that is available and how to access it. DHT developers and researchers should also be aware of the accessibility and inclusivity standards (e.g., government legislation and CLAS) and on how to use them to support digital health equity.
Summary of the two key recommendations to advance digital health equity, centring around adopting a collaborative working environment and using effective advertisement.
This review used a comprehensive and systematic approach to identify relevant literature. Included studies were published within the last decade to remain relevant to the current digital healthcare landscape. We opted to focus on qualitative research to gather rich detailed information on the facilitators and barriers to each strategy. Despite no geographical restrictions being placed on this search, we found that all included studies were conducted in high-income countries, which may limit the applicability of these findings to low- and middle-income countries; this also highlights the importance of further work in this area. Representation of the different religious groups and languages was limited, highlighting a gap in the literature and a need for greater diverse inclusion in research. None of the included studies reported on participants’ health literacy, which has previously been suggested to overlap with low digital literacy 43 ; this information would have aided our understanding of whether the participants included in the qualitative studies were truly representative of the groups that they were intended to represent. Future research should incorporate a standardised health literacy measure, such as the Newest Vital Sign (NVS) 44 or the Health Literacy Questionnaire (HLQ) 45 , into their methodology to provide greater detail on the participants in their study.
The appropriateness of recommendations from this systematic review could be further explored using an established framework, such as the APEASE criteria (Affordability, Practicability, Effectiveness, Acceptability, Size effects/safety, and Equity) 46 . This would involve seeking the perspectives of CLEARS demographic groups’ and relevant stakeholders’ (e.g., policy makers and community workers) on the practicalities of implementing these different strategies and recommendations to further advance this important area of digital health equity. The facilitators and barriers to implementing government-issued public health website accessibility standards should also be explored to further understand how to encourage use of these standards.
This systematic review identified three key themes relating to digital inclusivity, associated facilitators and barriers, and recommendations for advancing digital health equity. This information will guide individuals when designing, developing and implementing digital health interventions to ensure it is done in a digitally inclusive manner. This review also highlighted the need for further work to explore the feasibility and acceptance of implementing different strategies and recommendations to support digital health equity amongst those at risk of digital exclusion.
We conducted a scoping review of the literature to identify the sociodemographic factors that could put an individual at risk of digital exclusion. Based on the findings published in peer-reviewed articles 24 , 47 , 48 , 49 , 50 , 51 , 52 , 53 , 54 , 55 , 56 , 57 , 58 , 59 , 60 , systematic reviews 61 , 62 , 63 , 64 , government reports 8 , 65 , and regulatory organisation documents 66 , we identified a number of sociodemographic factors that we complied into six groups, relating to Culture (ethnicity, language, and religion) 8 , 47 , 48 , 49 , 50 , 51 , 52 , 53 , 62 , Limiting conditions (visual and hearing impairments) 6 , 54 , 66 , Education (at or below United Kingdom (UK) government mandated level or equivalent) 52 , 55 , 56 , 66 , Age (over 65 years) 51 , 54 , 55 , 56 , 62 , 66 , Residence (rural or deprived areas [based on consensus data within a country], or homeless) 8 , 24 , 51 , 60 , and Socioeconomic status (low income [earns less than 60% of the median household annual income within a country] and unemployed individuals) 8 , 52 , 55 , 56 , 62 , 65 , 66 abbreviated to CLEARS (Fig. 4 ). These factors often intersect (i.e. intersectionality), placing an individual at even greater risk of digital exclusion 8 , 64 , 65 , 66 .
A framework which encompasses sociodemographic factors associated with digital exclusion and recognises the role of intersectionality.
This systematic review was registered with PROSPERO (CRD42022378199) and followed PRISMA guidelines 67 . The search string utilised terms from two relevant scoping reviews 8 , 68 , with additional relevant terms included when searching four large online databases (Medline, Embase, PsycINFO and Scopus) (Supplementary Tables 1 – 4 ). The search focused on words associated with digital technology, health inequities, and CLEARS (Table 2 ).
The eligibility criteria followed the Population, Intervention, Comparison, Outcomes and Study design (PICOS) framework, recommended by the Cochrane Handbook for Systematic Reviews 69 , and provided an organising framework to list the main concepts in the search. The Population criteria included any group represented by our CLEARS framework (see above). The Intervention criteria focused on inclusive digital health strategies, which we defined as an action designed to alleviate the digital exclusion of individuals by promoting access, motivation, and/or use of information and communication technologies 2 , 3 , 4 , 5 . Articles needed to have discussed the facilitators or barriers associated with the inclusive digital health strategy (outcome criteria) to be included. This allowed the researchers to reflect on what currently worked or did not work to inform key recommendations. Only qualitative studies that provided rich in-depth experiences from CLEARS groups were included to aid our understanding of how a complex phenomenon, i.e., intersectionality, can affect digital exclusion 11 , 12 . Quantitative studies were excluded as they are designed to test a hypothesis or enumerate events or phenomena 11 , 12 , which was not aligned with the aim of this review. Only peer-reviewed articles published between 2012 and 2022 in the English language were included; this ensured only the latest advancements in digital technologies were considered.
Results from each database were exported into EndNote (version 20.5, Clarivate, International) and duplicates removed. Remaining articles were uploaded to Rayyan (Qatar Foundation, State of Qatar) 70 , where titles, abstracts, and full-texts were screened independently by two reviewers (SW, LL, EB) to minimise bias. The lead author (SW) screened all articles, acting as a constant throughout the process. Disagreements were resolved by a third reviewer (RMA). The reasons for excluding full text articles were recorded (Fig. 1 ).
The lead author (SW) developed a data-extraction sheet with the research team to extract and record specific study details, including participant demographics and a description of the inclusive digital health strategy under investigation (Supplementary Tables 5 and 6 ). Any measure used to record participants’ health literacy in the included studies, such as the Newest Vital Sign (NVS) 44 or the Health Literacy Questionnaire (HLQ) 45 , was also extracted. A quality assessment was carried out on the included studies using the Critical Appraisal Skills Programme (CASP) Qualitative Review Checklist 71 . Quality was measured by reporting the frequency of ‘yes’ (denoting the study met the criteria on the checklist) (Supplementary Tables 7 and 8 ).
The lead author (SW) performed a narrative thematic synthesis of the included studies. Firstly, the authors began by developing a preliminary synthesis of findings from included studies to identify the key strategies and list the facilitators and barriers to implementation. We then considered the factors that might explain any commonalities and differences in the successful implementation of these digital inclusive strategies across included studies. This involved exploring the directly reported verbatim quotations obtained from particular CLEARS groups and seeking to draw descriptive and explanatory conclusions around key themes 72 , 73 . All data management and analysis was carried out within N-Vivo (version 1.6.1, QSR International). Discussions with co-authors (SPS, RM, CT) were conducted at several stages throughout the analysis to discuss, refine and define themes to ensure a coherent narrative that reflected the data. Detailed descriptions and contextual material from the included studies was kept throughout the analysis to ensure that the trustworthiness was upheld 74 , 75 . Ethics approval was not required for this systematic review.
Further information on research design is available in the Nature Research Reporting Summary linked to this article.
All relevant data used for the study has been included in the manuscript and supplementary information.
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We would like to thank the social sciences librarian, Karen Crinnion, at Philip Robinson Library, Newcastle University, for her help and advice regarding the search strategy, choice of databases and search keywords for this systematic review. This work has been supported by the Early Detection of Neurodegenerative diseases (EDoN) research initiative, funded by Alzheimer’s Research UK with support from Gates Ventures and the Alzheimer’s Drug Discovery Foundation through its Diagnostic Accelerator Project. This project is also funded by the NIHR, (NIHR205190). The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care. The funder of the study had no role in study design, data collection, data analysis, data interpretation, or writing of the report. Ríona Mc Ardle is funded by the National Institute for Health Research (NIHR) (NIHR 301677) and the NIHR Newcastle Biomedical Research Centre (BRC) based at The Newcastle upon Tyne Hospital National Health Service (NHS) Foundation Trust; Newcastle University; and the Cumbria, Northumberland and Tyne and Wear (CNTW) NHS Foundation Trust. The views expressed in this publication are those of the author(s) and not necessarily those of the NIHR, NHS or the UK Department of Health and Social Care.
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Wilson, S., Tolley, C., Mc Ardle, R. et al. Recommendations to advance digital health equity: a systematic review of qualitative studies. npj Digit. Med. 7 , 173 (2024). https://doi.org/10.1038/s41746-024-01177-7
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The first crucial step towards military hospitals performance improvement is to develop a local and scientific tool to assess quality and safety based on the context and aims of military hospitals. This study introduces a Quality and Safety Assessment Framework (Q&SAF) for Iran’s military hospitals.
This is a literature review which continued with a qualitative study. The Q&SAF for Iran’s military hospitals was developed initially, through a review of the WHO’s framework for hospital performance, literature review (other related framework), review of military hospital-related local documents, consultations with a national and sub-national expert. Finally, the Delphi technique used to finalize the framework.
Based on the literature review results; 13 hospital Q&SAF were identified. After reviewing literature review results and expert opinions; Iran’s military hospitals Q&SAF was developed with 58 indictors in five dimensions including clinical effectiveness, safety, efficiency, patient-centeredness, and Responsive Management (Command and Control). The efficiency dimension had the highest number of indictors (19 indictors), whereas the patient-centered dimension had the lowest number of indices (4 indictors).
Regarding the comprehensiveness of the developed assessment framework due to its focus on the majority of quality dimensions and important components of the hospital’s performance, it can be used as a useful tool for assessing and continuously improving the quality of hospitals, particularly military hospitals.
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Military healthcare structures, particularly military hospitals, play an important role in achieving the health system’s goals and responding to the population health needs by supporting and providing medical services to the armed forces in military operations as well as assisting the civilian healthcare system [ 1 ].
In the hospital, due to the importance of services and dealing with human lives, quality assurance and improvement have become increasingly crucial [ 2 ]. Quality is a broad and multifaceted concept including technical competence, access to services, effectiveness, interpersonal relationships, efficiency, continuity and safety [ 3 ]. Quality improvement has gained increased attention in recent decades as an approach to increase service effectiveness, particularly in developing countries, and significant efforts have been made to improve the quality of healthcare services [ 4 ]. Service quality assessment is the first step to quality improvement [ 5 ]. Quality Assessment Framework (QAF) (including quality dimensions and assessment indicators) is one of the standard quality assessment methods [ 6 ]. QAFs are developed in accordance with health system requirements, strategies, and objectives. Each country has proposed different dimensions and indicators for quality assessment [ 7 , 8 , 9 ]. The USA has proposed the dimensions of efficiency, access, health system infrastructure, patient-centeredness, effectiveness, safety, coordination, and timeliness to assess quality of health care [ 10 ]. The World Health Organization (WHO) Regional Office for Europe has introduced Performance Assessment Tools for Hospital (PATH) with six dimensions including clinical effectiveness, staff orientation, responsible governance, safety and patient-centered [ 11 ]. The variation in QAFs demonstrates the necessity of considering each health system needs, strategies, goals, and service delivery infrastructure when developing these frameworks [ 12 , 13 ].
To measure the quality and safety of hospitals and create the basis for analyzing the strengths and weaknesses regarding hospital performance, it is crucial to acquire a local and scientific tool based on the hospital conditions [ 9 ]. Military hospitals should be assessed based on their unique indicators due to their unique missions and services related to receipting special patients or dealing with biological, chemical, and nuclear disasters [ 14 ]. It is necessary to pay special attention to the organizational structure, manpower, type and amount of equipment in developing the performance assessment of military hospitals [ 15 , 16 ].
To the best of our knowledge, there is currently no local and national framework for assessing the Iran’s military hospitals, while majority of countries in the world use a specific national framework to assess the performance and quality of hospital. This research seeks to develop a comprehensive and scientific framework for measuring multiple dimensions of quality using worldwide experiences. Hospital managers can acquire a comprehensive insight of current performance with the assistance of the data provided by this framework. This study was conducted to develop a Quality and Safety Assessment Framework (Q&SAF) for Iran’s military hospitals through an adjusted framework from WHO.
This is a qualitative study which was conducted in 2023. In order to develop a Q&SAF for Iran’s military hospitals, first, the quality dimensions and indicators as well as the frameworks and models in the scientific literature were identified (Literature review). Then, the expert panels held meetings to adapt the models and frameworks to the local conditions of the country and military hospitals as well as to introduce new indicators in accordance with the potentials and capacities of military hospitals (Expert panel). The results of the expert panel meetings led to the preparation of the initial list of quality and safety assessment dimensions and indicators. After preparing the initial list of indicators, in order to select the final indicators and reach a consensus regarding the final indicators, a qualitative survey was used (Modified Delphi survey). In the next step, the indicators selected based on the expert’s opinion were categorized quality dimensions, and the initial Q&SAF for Iran’s military hospitals was developed (Expert panel). In the last step; content validity index and Modified Kappa were used to finalize and validate the developed framework (Modified Delphi survey). The steps of developing the framework are indicated in Fig. 1 .
Irans military hospitals quality and safety assessment framework development flow
The methodology of overview was used in order to identify the models and frameworks for assessing the quality and safety in the hospital, as well as the indicators associated with each framework. Databases of PubMed, Scopus, web of science, and websites related to the WHO using related keywords and their Persian equivalents in Persian databases in the period from 2000 to 2023 were reviewed. The keywords included quality indicator, quality assessment, quality evaluation, quality assurance, performance indicator, standard, quality improvement, Hospital, health center, health facility, inpatient car, model, framework, project, plan. Additionally, a manual search of specialized journals and references of selected articles, organizational reports and other available information sources was done.
The studies that were developed for the hospital environment and also provided a comprehensive framework for assessing quality and safety (considering all aspects of quality and safety and not focusing on a specific dimension or service) were selected for review. Due to the variety of studies, papers written in languages other than Persian and English, studies conducted in settings outside of hospitals, and studies which focused on the quality of specific service or procedure were excluded from the review. Review and screening of studies was done according to Prisma guideline [ 17 ] and using Endnote software. In this step, the functional dimensions, the list of indicators and the scope of the identified frameworks were extracted.
In this step, the frameworks and models extracted from the literature were reviewed according to the capacities and potentials of military hospitals as well as the condition of Iran’s health system. A qualitative study (expert panel) was used for this objective. Following an initial meeting with experts, the dimensions of the Q&SAF for Iran’s military hospitals were selected. These dimensions were those that were most frequent among the identified frameworks and were most consistent with the conditions of Iranian hospitals. Next, the assessment indicators related to each of the dimension were reviewed. The primary criteria for selecting indicators included: the ability to measure the indicator in the hospital, the importance of the indicator, and the relevance of the indicator to the operational processes of the military hospitals.
Members of the expert panel included individuals with an experience in hospital performance assessment and the quality and safety improvement, as well as other individuals and academic members with related knowledge. These members were selected through the heterogeneous purposeful sampling technique (participants with maximum diversity).
Reviewing dimensions and indicators was done during two face-to-face meetings (Skype platform) for about 1.5 h. During these meetings, in addition to reviewing and selecting the dimensions and indicators extracted from the literature, new indicators suitable to the conditions of military hospitals were also introduced by the experts. In this way, a list of quality and safety assessment indicators was prepared.
After preparing the initial list of indicators based on the results of the previous steps, a modified Delphi survey [ 18 , 19 ] was used to reach a consensus about the indicators.
A purposeful sampling technique (according to the type of dimensions and indicators) was used to select participants of survey. The inclusion criteria for the participants included officials and managers of military hospitals and vice chancellor of treatment with at least 5 years of experience, policy makers of the Ministry of Health, and academic members in the fields of health and services management and health economics, health emergencies disaster and health information management.
The selection criteria of the indicators according to the criteria introduced by the WHO [ 20 ] included: the importance, feasibility and relevance of the indicator. Each of indicator scored between 1 and 5 based on the three criteria. The indicators were selected using the following parameters: indications with an average of less than 2 were disqualified, those with scores between 2 and 3.5 were returned to the second round of Delphi, and those with a score of 3.5 or more were accepted as the final indicators.
The initial framework was developed by the research team and experts based on the findings of the literature review and the qualitative part of the study. To develop the initial framework; the selected final indicators were classified in the selected dimensions in the second step. Also, in this step, for each dimension, related sub-dimensions were defined. The selection process for member of expert panel was similar to the second step.
The validity of the developed framework was assessed based on the opinions of experts. Accordingly, the initial framework with a detailed description of dimension and indicators sent to 10 experts throughout the Delphi questionnaire. To assess the validity of the framework, 10 items were evaluated. These items included (1) Applicability of the framework (2) Adaptation of the developed framework to the upstream documents (3) Ability to accept the framework by stakeholders (4) Efficiency (5) Flexibility (6) Effectiveness (7) Simplicity (8) Coherence and integration between framework dimensions (9) Comprehensiveness and (10) Overall.
In order to confirm the validity of the framework, modified content validity index and modified Kappa were used. This method was presented by Polit et al. in 2007 [ 21 ]. The following formulas were used to calculate Kappa.
N = Number of Experts.
A = the number of experts with score of a completely agree and agree.
Experts scored each of the items based on a 4-point Likert scale (completely agree to completely disagree). According to Polit et al.‘s proposal, Kappa lower than 0.40 be considered (necessary), between 0.6 and 0.74 (good) and above0.74 (Excellent).
The Q&SAF for Iran’s military hospitals was developed in five main steps. During the first step, 13 frameworks, 10 dimensions, and 1591 indicators related to each framework were extracted. In the next step, 5 dimensions and 60 indicators were selected based on the findings of the literature review and the recommendations of experts. Based on the results of the Delphi survey, 2 indicators were removed from the 60 indicators and finally 58 indicators were selected. The selected indicators were categorized in the five dimensions (Fig. 2 ). In the last step, ten experts were asked to assess validity of the framework, and after receiving their feedback, the estimated Kappa index for the framework was 8.9 out of 10.
The results of the development steps of Irans Military Hospitals Quality and Safety Assessment Framework
After screening the studies and reports extracted from the literature, finally; 13 frameworks along with 10 dimensions and 1591 indicators were identified. The dimensions were compared in order to determine their frequency (Table 1 ). The identified indicators were initially screened and after removing duplicate and unrelated indicators and merging similar ones, finally 137 indicators were selected.
Experts’ meetings with the participation of 9 experts (3 experts from the army hospital assessment and monitoring department, 6 academic faculty members (2 health management specialist with a focus on service quality assessment, 2 health information management specialist and 2 health emergencies disaster specialist) were held. In addition to the results of the literature review, the list of performance assessment indicators of military hospitals and other related documents about Iranian hospital performance assessment, were also reviewed by an experts’ panel. Based on the results of expert panel meetings, 5 dimensions including clinical effectiveness, safety, efficiency, patient-centeredness and Responsive Management (Command and Control) along with 60 quality and safety assessment indicators (14 indicators by experts and 46 indicators from literature) according to conditions and potential of Iran’s military hospitals were selected. Among the dimensions, the Responsive Management (Command and Control) dimension specifically focuses on the processes and performance of military hospitals.
The initial list of indicators was reviewed by experts through the modified Delphi survey. The participants in the Delphi survey included 2 experts from the regional office of the WHO, 2 faculty members of the Army University of Medical Sciences, 4 faculty members of medical sciences universities across the country, and 2 hospital managers. Based on the results of the Delphi survey; finally, 58 indicators (out of 60 indicators) scored higher than 3.5 and were selected as final indicators (Table 2 ).
Expert panel meetings were held to review the final indicators and classify them among the dimensions. Also, in these meetings, sub-dimensions were defined for each dimension. Finally; The Q&SAF for military hospitals was developed with 5 dimensions and 15 sub-dimensions (Table 3 ). Among the dimensions, the most indicators were related to the efficiency dimension (19 indicators) and the lowest indicators were related to the patient-centered dimension (4 indicators).
Also, among the following sub-dimensions; the most indicators are related to the sub-dimension of financial performance (9 indicators) and the lowest indicators are related to the information security and management (1 indicator), environmental safety management (1 indicator) and combat medicine and military health management (1 indicator).
The developed framework was sent to 10 experts (similar to the step 3) in order to validate it. Due to the obtained score above 0.74 in all 12 criteria of the questionnaire, the Delphi survey was completed in the first round and the Q&SAF for Military Hospitals was finalized (Table 4 ).
The Q&SAF for Iran’s military hospitals was developed through the utilization of a mixed-method approach and parallel use of review methods, quantitative, and qualitative methods. This framework has 58 quality and safety assessment indicators categorized under 15 sub-dimensions and 5 main dimensions, including clinical effectiveness, safety, efficiency, patient-centeredness, and Responsive Management (Command and Control).
Utilization of the indicators and dimensions identified from the literature and using the experiences of national and sub-national experts in developing the framework strengthened the study. Developing performance assessment frameworks using the qualitative studies approach and the Delphi technique and expert panel is a common and scientific way that has been used in many studies at different levels of the health system. Bruno et al. (2015) regarding the providing of guideline-based quality indicators for primary care in England, Veena et al. (2005) in the development of coronary artery bypass surgery quality indicators and also, Tabrizi et al. (2013) to develop performance indicators for patient and community engagement and to improve educational management in hospitals, have used the Delphi method and expert panel [ 36 , 37 , 38 , 39 ].
According to a review of several assessment frameworks that provided for hospital quality and safety, the primary challenges were related to the incompleteness of some frameworks and inability of some other to coverage all of hospital functional areas [ 40 ]. The Q&SAF for Iran’s military hospitals is sufficiently thorough and covers all functions, from clinical to administrative and financial. This important issue has been considered in the WHO-PATH framework and the American Medicare Hospital Comparison Program.
In accordance with most previous frameworks, the majority of the indicators utilized to assess the Iran’s military hospitals quality and safety were at the level of outcome assessment. The experts also believed that the results of the hospital’s performance should be quality-oriented and the framework should assess the results of the activities.
Based on the finding of literature review and comparative review of Q&SAF; The most focus on quality in hospital was the clinical effectiveness dimension, which is assessed in all of current frameworks [ 41 ]. This reflects the current trend toward adhering to clinical and evidence-based medical guidelines and highlights the significance of initiatives and methods for assessing the cost effectiveness of services [ 42 ]. Accordingly, clinical effectiveness has been considered in the Iran’s military hospitals Q&SAF, and 11 indicators have been assigned to it.
As frontline defenders, health workers are at high risk of infection during the COVID-19 pandemic [ 43 , 44 , 45 ]. The safety of health workers and patients is a unique advantage in the quality of healthcare and an important priority in healthcare systems [ 32 , 41 , 46 ]. The 13th general work plan of the WHO and the strategic vision of EMRO all prioritize the safety of health workers, and the WHO has considered September 17 as the World Patient Safety Day since 2019 [ 47 , 48 ]. According to the reviewed frameworks (ACHS and QIP) which pay special attention to the safety dimension, in the Iran’s military hospitals Q&SAF, the patient and health worker safety were emphasized and 14 indicators have been assigned to safety dimension. Hospital efficiency is a lever to improve the development of a health care system. It is important for a hospital to maintain the level of quality in healthcare services while achieving efficient services at the lowest cost [ 49 ]. Military hospitals are financed annually through the Global budget [ 50 ]. The government’s budget deficit and financial challenges have increased pressure on Iran’s military hospitals to reduced costs [ 50 ]. Efficiency must be accurately monitored in order to identify improvements in healthcare productivity [ 51 ]. In order to improve the efficiency of military hospitals and in accordance with 9 frameworks extracted from the literature (out of 13 frameworks); efficiency dimension by the largest number of indicators was considered.
The mission of military hospitals is to enhance the health of military personnel by providing health support to a wide range of covered military personnel [ 50 ]. Military hospitals are tasked with caring for injured soldiers as well as offering routine medical care to active-duty military members, their families, and retirees [ 50 ]. Due to increasing the health literacy of patients and changing the needs of the population; the responsiveness of hospitals has faced fundamental changes. Therefore, the hospital’s response should be patient-centered and should consider the patient’s priorities, needs, values, and clinical decisions in providing health services [ 52 ]. Based on this and in accordance with the WHO suggestion regarding the centrality role of patients in the hospital and involving them in providing service processes; one of the important dimensions of the Iran’s military hospitals Q&SAF was assigned to the patient-centered dimension.
In addition to the many similarities that military hospitals have with civilian hospitals in providing health services to the community; in some functional aspects; due to the specific population coverage and specific missions, they have few differences with civilian hospitals [ 53 ]. Therefore, in the developed framework, it was necessary to define a specific dimension for military hospitals in accordance with its specific missions. Accordingly, the Responsive Management (Command and Control) dimension with the sub-dimensions of staff management, accidents and disasters management, management and security of data and information, environmental safety management and management of combat medicine and military health were considered. The assessment of these sub-dimensions will be done based on the specific guidelines that were used for military hospitals assessment. Using global experiences to assess the quality of hospitals and combining it with the specific missions of military hospitals can improve the performance of these hospitals similar to civilian hospitals.
The developed assessment framework and associated quality and safety improvement indicators can be tailored for use in civilian hospitals to enhance patient care. The applicability and adaptability of this framework in civilian hospitals can be greatly improved by considering key influencing factors, such as customizing the indicators to fit the local context to ensure their relevance and applicability, integrating them with existing information systems and reporting mechanisms, and conducting pilot tests to gather feedback and make necessary adjustments [ 54 , 55 ].
The participation of patients and community could increase the comprehensiveness and effectiveness of the framework. One of the study’s limitations is the absence of patient engagement in the framework development process. In order to reduce the impact of this limitation, indicators related to the patient-centered dimension were included.
The Iran’s military hospitals Q&SAF; as a comprehensive tool, provides a suitable opportunity for policy makers and managers to assess the hospitals quality and safety and formulate effective strategies to improve the hospital performance. It is suggested that this framework and its suggested indicators be used for the quantitative and qualitative assessment of Iran’s military hospitals, including the financial resources required to provide health services, human resource management, quality of care, patient and health worker safety, and other functional aspects. Also, this framework can be considered as a reference in assessing and comparing the performance of military hospitals.
Data will be made available on request.
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Critical Care Quality Improvement Research Center, Shahid Modarres Hospital, Shahid Beheshti University of Medical Sciences, Tehran, Iran
Nader Markazi-Moghaddam
Department of Health Management and Economics, School of Medicine, AJA University of Medical Sciences, Tehran, Iran
Nader Markazi-Moghaddam, Mahdi Nikoomanesh & Sanaz Zargar Balaye Jame
Infectious Diseases Research Center, Aja University of Medical Sciences, Tehran, Iran
Mojgan Mohammadimehr
Health Management and Economics Research Center, Iran University of Medical Sciences, Tehran, Iran
Mahdi Nikoomanesh
Tabriz Health Services Management Research Center, Tabriz University of Medical Sciences, Tabriz, Iran
Ramin Rezapour
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Nader Markazi-Moghaddam: Wrote the paper; Analyzed and interpreted the data, materials.Mojgan Mohammadimehr: Supervised the study methodologyMahdi Nikoomanesh: Interpreted the dataRamin Rezapour: Wrote the paper; collected and analyzed the dataSanaz Zargar Balaye Jame: Supervised the study methodology and drafted the initial manuscript.
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Markazi-Moghaddam, N., Mohammadimehr, M., Nikoomanesh, M. et al. Developing a quality and safety assessment framework for Iran’s military hospitals. BMC Health Serv Res 24 , 775 (2024). https://doi.org/10.1186/s12913-024-11248-w
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Literature Review Matrix. As you read and evaluate your literature there are several different ways to organize your research. Courtesy of Dr. Gary Burkholder in the School of Psychology, these sample matrices are one option to help organize your articles. These documents allow you to compile details about your sources, such as the foundational ...
A review matrix can help you more easily spot differences and similarities between journal articles about a research topic. While they may be helpful in any discipline, review matrices are especially helpful for health sciences literature reviews covering the complete scope of a research topic over time.
A literature review is a comprehensive summary of previous research on a topic. It includes both articles and books—and in some cases reports—relevant to a particular area of research. Ideally, one's research question follows from the reading of what has already been produced. For example, you are interested in studying sports injuries ...
The matrix method of literature review is a powerful and practical. research tool that forms the initial scaffolding to help researchers. sharpen the focus of their research and to enable them to ...
Literature review is an essential feature of academic research. Fundamentally, knowledge advancement must be built on prior existing work. To push the knowledge frontier, we must know where the frontier is. By reviewing relevant literature, we understand the breadth and depth of the existing body of work and identify gaps to explore.
Examples of literature reviews. Step 1 - Search for relevant literature. Step 2 - Evaluate and select sources. Step 3 - Identify themes, debates, and gaps. Step 4 - Outline your literature review's structure. Step 5 - Write your literature review.
A review matrix can help you more easily spot differences and similarities between journal articles about a given research topic. Review matrices are especially helpful for health sciences literature reviews covering the complete scope of a research topic over time. This guide focuses on the review matrix step in the literature review process.
The synthesis matrix is a chart that allows a researcher to sort and categorize the different arguments presented on an issue. Across the top of the chart are the spaces to record sources, and along the side of the chart are the spaces to record the main points of argument on the topic at hand. As you examine your first source, you will work ...
A formal literature review is an evidence-based, in-depth analysis of a subject. There are many reasons for writing one and these will influence the length and style of your review, but in essence a literature review is a critical appraisal of the current collective knowledge on a subject. Rather than just being an exhaustive list of all that ...
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In The Literature Review: A Step-by-Step Guide for Students, Ridley presents that literature reviews serve several purposes (2008, p. 16-17). Included are the following points: Historical background for the research; Overview of current field provided by "contemporary debates, issues, and questions;" Theories and concepts related to your research;
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Literature reviews offer a critical synthesis of empirical and theoretical literature to assess the strength of evidence, develop guidelines for practice and policymaking, and identify areas for future research.1 It is often essential and usually the first task in any research endeavour, particularly in masters or doctoral level education. For effective data extraction and rigorous synthesis ...
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A sophisticated literature review (LR) can result in a robust dissertation/thesis by scrutinizing the main problem examined by the academic study; anticipating research hypotheses, methods and results; and maintaining the interest of the audience in how the dissertation/thesis will provide solutions for the current gaps in a particular field.
A synthesis matrix also known as a Literature Review Matrix is an effective and efficient method to organize your literature by recording the main points of each source and documenting how sources relate to each other. If you know how to make an Excel spreadsheet, you can create your own synthesis matrix, or use one of the templates below.
Background Racism and implicit bias underlie disparities in health care access, treatment, and outcomes. An emerging area of study in examining health disparities is the use of stigmatizing language in the electronic health record (EHR). Objectives We sought to summarize the existing literature related to stigmatizing language documented in the EHR. To this end, we conducted a scoping review ...
Popay, J., Rogers, A. & Williams, G. Rationale and standards for the systematic review of qualitative literature in health services research. Qualitative Health Res. 8 , 341-351 (1998).
Book Review: Health sciences literature review made easy: The Matrix Method ... Jackie A. Smith. Qualitative Health Research. Oct 2015. Restricted access. Book Review: Structural Mechanics: Graph and Matrix Methods. Show details Hide details. M. A. Millar. International Journal of Mechanical Engineering Education. Apr 1994. Restricted access.
English document from University of Rochester, 2 pages, LITERATURE REVIEW MATRIX Author/ Date Author/ Theoretical/ Conceptual Framework Theoretical/ Research Question(s)/ Hypotheses Research Methodology Methodology Analysis & Results Analysis & Conclusions Conclusions Implications for Future research Implicati
A scoping review [32,33,34] was conducted, as part of a larger multi-method participatory research known as the AMORA project [] to characterize flexible at-home respite.Scoping reviews allow to map the extent of literature on a specific topic [32, 34].The six steps proposed by Levac et al. [] were followed: [] Identifying the research question; [] searching and [] selecting pertinent ...
Background The first crucial step towards military hospitals performance improvement is to develop a local and scientific tool to assess quality and safety based on the context and aims of military hospitals. This study introduces a Quality and Safety Assessment Framework (Q&SAF) for Iran's military hospitals. Methods This is a literature review which continued with a qualitative study. The ...
The microstructure of liquid phase sintered M3:2 high speed steel and the effect of adding carbon and silicon on the microstructure was characterized by scanning electron microscopy, dispersive spectrometry, and X-ray diffraction. Various types of carbides were formed depending on the added carbon and/or silicon, the sintering atmosphere and the cooling rate. The microstructure of sintered M3 ...
The concept of self-healing materials and the development of encapsulated curing agents represent a cutting-edge approach to enhancing the longevity and reducing the maintenance costs of cementitious structures. This systematic literature review aims to shed light on the parameters involved in the autonomous self-healing of cementitious materials, utilizing various encapsulated healing agents ...